Telephone Meeting Friday 31 January 2014

[Nev Black]

Agenda

 

Disclaimer

This Community does not give medical advice. No members are authorized to give medical advice. Ask your doctor if you hear anything here that you think may be related to your treatment.

 

Time

9:30am - 11:00am Eastern Standard Time (Queensland)

The formal phone-in meeting ends after 90 minutes.

The lines are kept open for an hour after that for members to informally chat.

 

Daylight savings times

Brisbane 9:30am

Sydney, Melbourne, Hobart: 10:30am

Adelaide, 10:00am

Perth 7:30am

Winter times

Brisbane 9:30am

Sydney, Melbourne, Hobart 9:30am

Adelaide 9:00am

Perth 7:30am

 

Dial in

You must dial in - we do NOT dial you.

 

Phone numbers only in email.

 

Speaking time

We want many voices to be heard. If you are a member listed to speak below, the chair will probably expect you to take no more than about 5 minutes on presentation so there is plenty of time for others to respond.

Special Guest Speakers are invited to speak for 10-15 minutes, then field questions.

 

Guidelines

No noise

House - radio, TV, computer, pets, other phones, conversation

Yourself - mute button, or mouthpiece away from mouth

Phone - call waiting off (#43#), Mute button or hang up to leave the room. No mute button? ##4 to mute, ##5 to unmute. Cordless phone - don't carry, put on folded handkerchief to limit reverberation

Other calls - Please do NOT use call waiting or another line on the same phone to take another call - members around Australia are left listening to your 'hold' music until you return.

Speaking

Speak clearly into mouthpiece in ordinary voice.

Say who you are when signing in, and each time you speak.

Listen for the gavel. The Chair may need to interrupt.

Help the secretary by later emailing details for the minutes.

Restarting

You may hang up and sign in again as many times as necessary.

Sometimes we may have to restart the meeting - dial in again. With everyone calling at once you may need to try more than once.

 

Apologies

From.

 

Late starters

Maybe you haven't had access to the agenda or you have late breaking news you would like to share. Tell the chairman here at the beginning of the meeting that you would like to speak, and he will fit you in probably later, perhaps right now if that suits.

 

 

Other new stories or updates

Any man who wishes to update us on his progress is welcome to contribute here.

 

Formal end

The Chair will declare the formal part of the teleconference closed at his discretion, perhaps around 11am. The teleconference lines will be kept open until at least 11:30 for anyone who wishes to continue discussions, update his health, or just chat.

 

Informal chat

Any topic you like - topics we didn't reach, something discussed earlier you wish to comment on, an update on your health, how your new boat is going, moaning about the weather, anything that you wish to say.

 

Future phone-in support group meetings

Phone-in meetings are held on the fourth Friday (NOT always the last Friday) of each month (except January (one week late) and December (one week early)). In 2014 there will be no phone-in meeting in April because the last two Fridays are public holidays.

 

Phone-in support group meeting dates 2014

2014

January 31 (not the 4th Friday)

February 28

March 28

April NO phone-in (Easter, Anzac day)

May 23 (not the last Friday in the month)

June 27

July 25

August 22 (not the last Friday in the month)

September 26

October 24 (not the last Friday in the month)

November 28

December 19 (not the 4th Friday)

 

Changes or questions

If you wish to update us about any changes in your health or treatment, or have a question you would like answered or discussed, or you would like to talk about joining a teleconference group, let us know. Then we can put it high on the agenda so it doesn't get lost - just reply to this email, or use Contact Jim on JimJimJimJim.com.

 

This message has been send to you because you are a member of an Advanced Prostate Cancer Support Group.

 

Visit JimJimJimJim.com and click on Contact Jim if this is a problem.

[Guest ColReesRC30]

Dear Jim & Nev,

 

Apologies for tomorrow. GP appointment conflicts with time for teleconference.

 

I am very keen not to shift Dr appointment as it's Denosumab and Zoladex day, and also the day I get PSA result after a full month on Abiraterone.

 I'm hoping for maintenance of or improvement on the initial very pleasing reading I got at the end of Dec - PSA down by 60% in just 5 days. I'm hopeful as I have a feeling of wellbeing that I haven't had for a very long time.

 

All the best for tomorrow.

 

Col R.

 

[Geoff Buttfield]

Jim and Nev (plus all the members)

Unfortunately, due to the rising extortionate costs of maintaining a landline phone, I now only have a prepaid 'unlimited national calls' mobile service (for a lesser monthly cost than line rental). For how long are we going to continue with a phone conference system which prohibits participation by those not conveniently attached to their home phone? My research has shown that my service will allow me to connect to the teleconference at no cost, but there is no way to do so. Surely other members who are in the same boat, or travelling Australia would feel the same way.

Unfortunately, until this problem is rectified, I will be unable to participate in Teleconferences.

Regards

Geoff B.