John Murphy Posted October 24, 2013 Share Posted October 24, 2013 Introduction - if you wishFrom being a healthy person all my life,succumbing to aggressive prostate cancer at 58 came as a huge shock to my system, lifestyle and business. I was also diagnosed with kidney cancer, which was cleared with a partial nephrectomy in 2006. I am happily married with 4 loving and supportive adult children and 7 grandchildren.Month and year of diagnosis. Example: June 2009Feb 2005Age at diagnosis. Example 61 years58PSA at diagnosis. Example: 7.732Gleason score at diagnosis. (from biopsy) Examples: 7 OR 3+44+3=7Biopsy details. Examples: Positive cores 7/12 (58%) OR (R: 4+5 75%, 4+5 75%, 4+5 95%, 4+3 20%, 3+4 15% L: -, -, -, -, -, 3+4 50%) 12 cores, 4 benign, 8 positive. 4+3=7. One core grade 5 making Gleason more like 8. Bone scan result at diagnosis. Examples: Clear OR Metastases in pelvis and lower spineBone scans 4th rib, possible sacrum and T7.Lymph nodes at diagnosis. Examples: Clear OR CT scan shows 2 lymph nodes positiveCT's, negative lymph node involvement.Capsular penetration (growth through prostate wall). Examples: None OR MRI shows probable extra capsular extension at left base in midline surrounding seminal vesicles and ejaculatory ductsSome capsular extension.Highest PSA before treatment. Example: 10.432Initial treatment - surgery. Examples: Robotic prostatectomy OR open prostatectomyNo surgery.Initial treatment - radiation. Examples: External beam OR brachytherapy OR HDR brachytherapy boostNo treatment to prostate.Initial treatment - hormone therapy. Examples: Zoladex, continuous OR Zoladex + Cosudex intermittent after initial 12 monthsHormone therapy (Lucrin), for 12 monthsInitial treatment - other. Examples: Immediate chemotherapy with Taxotere OR HIFU (High Intensity Focussed Ultrasound)nilLowest PSA after initial treatment. Example: 0.20.6Testosterone after treatment. Examples: 6 nmol/L after 6 months, 15 nmol/L after 18 monthsTestosterone 10.9 after 20 months.Testosterone 3.3 after 5 years.Testosterone 0.7 currentMonth and year of recurrence. Example: June 2012November 2006PSA at recurrence. Example: 2.713.5Testosterone at recurrence. Example: 0.5 nmol/L10.5Bone scan result at recurrence. Examples: Clear OR Metastases in pelvis and lower spineResults are inconclusive but metastases still clearly present in 4th rib.Other scan result at recurrence. Examples: CT scan clear OR Pelvic MRI with IV contrast shows recurrence in prostate bedMRI shows obvious cancer in prostate bed. Not surprising as I still have a prostate.Recurrence treatment - radiation. Example: External beam to prostate bed OR External beam to 2 bone metastasesExternal beam to my 4th rib. A course of 5 treatments, in 2006.Recurrence treatment - hormone therapy. Examples: Zoladex + Cosudex continuous OR NilutamideIntermittent therapy for 18 months. After recurrence started triple hormone therapy for 13 months, as per Dr Leibovich, i.e. Lucrin,150 mg Cosudex and Proscar. I then took Prostasol for 2 years which kept my PSA low (<0.5).Recurrence treatment - chemotherapy. Example: Taxotere, three weeklyNil to date, however, maybe some Taxotere in the future. I hope I can avoid this.Recurrence treatment - other. Example: On trial of Zytiga (abiraterone acetate)Hoping to get on a Zytiga trialCurrent treatment status. Examples: Continuing ADT OR Monitoring PSA each 6 weeksContinuing ADT with PSA monitoring every 6 weeks.Last few PSA scores with dates. Example: PSA 0.04 Jul 2011, PSA 0.05 Sep 2011, PSA 0.07 Feb 2012, PSA 0.11 Jul 2012Latest PSA October 2013, 41Final paragraphs - anything else you wish to sayI feel I am at a crossroad. My oncologist has held off with chemotherapy as my lifestyle and quality of life is still reasonable.I am not quite sure whether to wait until I become really sick.My eligibility for trials is limited as I still have not had treatment on my prostate.I continue to enjoy life and work hard at the things that I think help. That is, I exercise regularly,including daily weights, my diet is healthy and I meditate daily as well.I also follow Snuffy Myers' blog, which I find helpful.My Vit D levels at time of diagnosis was < 50, now it is > 100.My bone density levels are at this time good. Thank you for this opportunity to participate and thank you for the excellent forum. Date updated. Example 23 September 201224/10/2013 Link to comment Share on other sites More sharing options...
This topic is now archived and is closed to further replies.