This Sunday 5 May 2019: Special Phone-in-meeting discussion: Lutetium 177

[Nev Black]

This Sunday 5 May 2019: Special Phone-in-meeting discussion: Lutetium 177

 

Agenda Sunday 5 May 2019 at 10am Eastern Standard Time

You must dial in - we do NOT dial you.

                                                                       

Will Lutetium 177 benefit you?

Roundtable Subject - Lutetium 177

 

To Steve from the USA, here for Lutetium 177 infusions in Sydney, Australia, welcome.

 

If you have been part of a Lutetium 177 treatment regime, it could be of tremendous benefit if you could share your experience with other members who may have the opportunity, in the future, to benefit from Lutetium 177.

 

Potentially, millions of new dollars are coming for research into Lutetium 177 for Advanced Prostate Cancer in this country.

That will mean more trials.

Several of our members have already participated in trials.

Some are still on Lutetium 177 trials.

A few of our members have paid thousands of dollars of their own money to have Lutetium 177 infusions.

This Sunday we have the opportunity to share experiences with this new form of treatment.

Do you know what questions to ask your doctor?

Please join us if you are able.

 

Roundtable Subject: Lutetium 177 - new stories, updates, questions

Any man who wishes is welcome to contribute here. 

 

Landline - Anywhere in Australia - 25 cents

Phone numbers only in email.

Problem? Contact Jim

or          secretary@jimjimjimjim.com

 

You must dial in - we do NOT dial you.

Landline - Anywhere in Australia - 25 cents

1300 663 845 (landline call from anywhere in Australia) (cost 25 cents)

7701# Conference number

7701# Password 

 

Mobile phone - only inside these major capital cities - your phone plan cost

Perth (mobile call from inside Perth see warning below)

08 6103 8751

Brisbane (mobile call from inside Brisbane see warning below)

07 3166 2169

Sydney (mobile call from inside Sydney see warning below)

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Canberra (mobile call from inside Canberra see warning below)

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Melbourne (mobile call from inside Melbourne see warning below)

03 9948 2088

Adelaide (mobile call from inside Adelaide see warning below)

08 7002 8702

7701# Conference number

7701# Password

 

Disclaimer

This Community does not give medical advice. No members are authorised to give medical advice. Ask your doctor if you hear anything here that you think may be related to your treatment.

 

 

Mobile phone warning

The costs of mobile calls are nothing to do with the Advanced Prostate Cancer Support Group or with PCFA. They are between you and your phone provider (Optus, Telstra, Virgin, Vodafone, etc).

If you dial one of the capital city numbers given above from a mobile phone, the cost to you will be the cost on your mobile phone plan. If your plan gives you free, or low cost local calls, and you are in one of these cities, it should be free, or a local call. If your plan gives you free, or local cost national calls that should work too.

Be sure - call your provider, give the number you might be calling, and check the cost for you to call that number.

   

Guidelines

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Speaker phone

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Mobile phone

You will need enough charge for the length of the call, or take the call with your charger plugged in.
Speaking
Speak clearly into mouthpiece in ordinary voice.

Say who you are when signing in, and each time you speak.
Listen for the gavel. The Chair may need to interrupt.
It's a meeting of 20 people, not a simple phone conversation. If you are not one of the two people in the particular conversation at the time, keep your mute button down and let others contribute.
Help the secretary by later emailing details for the minutes.

Restarting
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[Charles (Chuck) Maack]

I would find it very educational, as I would expect to others as well, if somehow the discussion by all was recorded then put into print what each of those having experienced Lutetium 177 treatment had to say about their individual experience then shared to we all on this forum.  I hope this may be considered.  

[John44]

I would second that motion. Unfortunately, because of prior commitments I am unable to attend.

However, I would really like to know how Lutetium 177 (and radium 223) therapy is progressing; 

particularly from the patient perspective.  So, a printed record would be most helpful.

[Clive]

My oncologist has warned me that Radium 223 affects the bone marrow and thus does not recommend what I thought was a terrific breakthrough.