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Merv ALLAN. My Story.


seafriend40

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seafriend40

Thanx to all who replied. Forgot to mention I am 78 years of age, am married, and retired, have the tired part, still looking for re!!Had a long phone conversation with Jim, and that is how I come to be on this site!!

Have just seen Oncologist, he has put me on Hormone Therapy, LUCRIN DEPO, I think, writing hard to read, initial 1 month injection then PSA test to see ifit has dropped from 61 where it is now. If everything OK will follow up with 6 month injection, fingers crossed!!!

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Colin Glover

Hi Merv

I'm same age, a year ago my psa was 34. I went on to Lucrin 3 monthly within a fortnight my psa was 10 then dropped to 4.6 and has been steadily dropping to 3.6 a couple of months ago. All with little and manageable side effects. However I took up the exercise challenge of the Man PLan by Lucrin and have benefited significantly. I do it at home but it can be done in a gym. Best of luck.

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Hi Merv,

i am the same age and situation as you, 3 years ago I had a psa of 9, 3 months later it was 21, and my urologist diagnosed me with prostate cancer. By the time I had a biopsy my psa had gone to 52. The biopsy was positive and was put on Lucrin Depot 4, which was a 4 monthly injection. By 6 months my psa was below 1. Unfortunately after a pet/ct scan it was found that the cancer had metastasided into my spine and bones. After chemotherapy and radiation I am under control and it has been controlled for the last 3 years. I am now doing some exercise classes which hopefully will improve my condition. My only suggestion is, don’t have chemo unless it is essential because there are many side effects and I still have them after 3 years. Good luck

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seafriend40
On 10/15/2018 at 1:07 PM, seafriend40 said:

Thanx to all who replied. Forgot to mention I am 78 years of age, am married, and retired, have the tired part, still looking for re!!Had a long phone conversation with Jim, and that is how I come to be on this site!!

Have just seen Oncologist, he has put me on Hormone Therapy, LUCRIN DEPO, I think, writing hard to read, initial 1 month injection then PSA test to see ifit has dropped from 61 where it is now. If everything OK will follow up with 6 month injection, fingers crossed!!!

Have spoken to my GP and requested a PET SCAN, was informed it could only  be requested by a Specialist, contacted Oncologist, who had told me that with PSA at 61,"most likely I was riddled with cancer", wife was most upset when I told her!1Oncologist apparently is"upset" at my attitude, but am seeing him again next Monday, all i'm wanting is referral for PET SCAN!! Can't understand his attitude!!

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seafriend40

Monday, 22 October, 3pm. Have just had first Lucrin Depo injection. Consisted of liquid and powder in syringe which had to be mixed in first chamber of syringe, then was injected in buttock just below right hip, is aching as I post this but otherwise was not as bad as I expected, fingers crossed now for 1 month then P.S.A.test. No PET SCAN at this time!! Onc is in Private practice, his reason for not using PET SCAN, seems based on the fact that PSA has grown very slowly over past 5-6 years until now at 61. He reasons that if cancer had spread to other organs excessively I would either be crippled, if in spine, or in a box 6 feet under by this time. Second reason, not expressed, but hinted at is Cost to Government, which is why it can ONLY be requested by Specialist. No mention of Androcur in conjunction with Lucrin, but previous experience with Androcur makes it a NO GO in my case!!

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Just read your last two posts.  Good luck with the Lucrin - it worked for me for 16 years, and the ache will go away.  I look forward to your next post to see how the Lucrin is working.  Did the Onc give you any Androcur or similar tablets to take ??  You will quite often get a flare up in your PSA from the first injection of Lucrin, and they should give you something (in my case Androcur) to stop this flare.  I am horrified that your Onc would tell you that you are "most likely riddled with cancer" without any evidence.  It doesn't matter if you have one tumor contained in the prostate, or a multiple tumors in lymphs and/or bones all over the place, without a PET you simply don't know what you have.  Is this Onc in private practice or at Bundaberg hospital ??  His attitude sucks !!

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Colin Glover

I totally agree with you Kezza2 about the oncologist. That was an amazing run with Lucrin. Mines been a year plus with psa still going down. Have you got any thoughts as to what you especially did to keep it going for so long? Was it continuous one after the other injections or were there any gaps. Did psa fluctuate and how much did you exercise?  Thanks

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Hi Colin,

Yes I had a good run out of Lucrin.  My Onc is a supporter of intermittent treatment, that is I had injections when my PSA got up to about 5.0 and continued them for about 12 months until my PSA dropped to below 0.2, then I would have a break of about 12 months while my PSA slowly climbed back up.  I think my cancer was particularly susceptible to ADT.  When first diagnosed, my PSA had climbed to 42 but rapidly fell to 12 after the first Lucrin injection before I had External Beam RT, and I stayed on Lucrin for two years after.  I was very active while still working, but after I retired I went to the Gym 3 days a week for a solid 2 hour workout, but I am not exercising presently (except walking and bike) while I settle into a docetaxel program of good days and not-so-good days.

Hope that is useful.

Kerry

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seafriend40
On 10/15/2018 at 3:47 PM, Colin Glover said:

Hi Merv

I'm same age, a year ago my psa was 34. I went on to Lucrin 3 monthly within a fortnight my psa was 10 then dropped to 4.6 and has been steadily dropping to 3.6 a couple of months ago. All with little and manageable side effects. However I took up the exercise challenge of the Man PLan by Lucrin and have benefited significantly. I do it at home but it can be done in a gym. Best of luck.

 

On 10/22/2018 at 3:33 PM, seafriend40 said:

Monday, 22 October, 3pm. Have just had first Lucrin Depo injection. Consisted of liquid and powder in syringe which had to be mixed in first chamber of syringe, then was injected in buttock just below right hip, is aching as I post this but otherwise was not as bad as I expected, fingers crossed now for 1 month then P.S.A.test. No PET SCAN at this time!! Onc is in Private practice, his reason for not using PET SCAN, seems based on the fact that PSA has grown very slowly over past 5-6 years until now at 61. He reasons that if cancer had spread to other organs excessively I would either be crippled, if in spine, or in a box 6 feet under by this time. Second reason, not expressed, but hinted at is Cost to Government, which is why it can ONLY be requested by Specialist. No mention of Androcur in conjunction with Lucrin, but previous experience with Androcur makes it a NO GO in my case!!

 

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seafriend40

Recently had PSA Test, down from 61 to 24! Have now had second Lucrin Depo 45mg 6 month injection. Very sore bum for a couple of days but all is well now. Have another PSA test in June 2019, fingers crossed!!

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