Charles (Chuck) Maack Posted January 19, 2018 Share Posted January 19, 2018 January 2018 I am currently 25+ years since my diagnosis November 1992, open surgical removal of my prostate gland December 1992, salvage radiation Spring of 1993, recurrence November 1996, and a variety of androgen deprivation therapy (ADT) medications from then to continued currently. Have been prescribed as ADT medications over the years with Lupron/leuprolide injections, Casodex or its generic bicalutamide, dutasteride/Avodart, brief Firmagon/degarelix, brief nilutamide/Nilandron, Zytiga/abiraterone acetate accompanied by prednisone or better yet dexamethasone, Metformin/Glucophage accompanied by Vitamin B12 (Vitamin B12 because Metformin can deplete this important Vitamin in the system for some – Vitamin B12 level should be tested to determine if medication required), cabergoline/Dostinex 0.25mg every Monday, Wednesday, and Friday (comes in 0.5mg tablet requiring breaking in two), and Xtandi/enzalutamide for prostate cancer control and management. Also, for bone protection, earlier Fosamax/alendronate but then switched to Prolia/denosumab 60mg injection every 6-months when that medication became available. Current continuing medications because of continuing, lurking prostate cancer: Lupron 6-month 45mg injection, Avodart 0.5 capsule one daily (though after four to six months daily use could be reduced to one capsule every three or even four days because of its long half-life – a money saver for those paying out-of-pocket), Xtandi 4-160mg capsules daily, Metformin 500mg ER (extended release) one tablet in morning, one in evening, accompanied by Vitamin B12 1500mcg one tablet daily, cabergoline 0.25mg (one-half of 0.5mg tablet) every Mon/Wed/Fri. For bone protection: denosumab as Prolia 60mg subcutaneous injection every 6-months. Most recent PSA level 1.090ng/ml, so watching closely to hopefully manage below 2.0ng/ml as long as possible. DISCLAIMER: Please recognize that I am not a Medical Doctor. Rather, I do consider myself a medical detective. I have been an avid student researching and studying prostate cancer as a survivor and continuing patient since 1992. I have dedicated my retirement years to continued deep research and study in order to serve as an advocate for prostate cancer awareness, and, from an activist patient’s viewpoint, as a mentor to voluntarily help patients, caregivers, and others interested develop an understanding of this insidious men’s disease, its treatment options, and the treatment of the side effects that often accompany treatment. There is absolutely no charge for my mentoring – I provide this free service as one who has been there and hoping to make their journey one with better understanding and knowledge than was available to me when I was diagnosed so many years ago. IMPORTANTLY, readers of medical information I may provide are provided this “disclaimer” to make certain they understand that the comments or recommendations I make are not intended to be the procedure to blindly follow; rather, they are to be reviewed as MY OPINION, then used for further personal research, study, and subsequent discussion with the medical professional/physician providing their prostate cancer care. Charles (Chuck) Maack - Prostate Cancer Patient/Activist/Mentor (A mentor should be someone who offers courtesy, professionalism, respect, wisdom, knowledge, and support to help you achieve your goals; would that I succeed) Always as close as the other end of your computer to help address any prostate cancer concerns. "What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others." “A good character is the best tombstone. Those who loved you will remember. Carve your name on hearts, not on marble.” “Sepius Exertus, Semper Paratus, Semper Fortis, Semper Fidelis, Fraters Infinitas” “Often tested, Always Prepared, Always Courageous, Always Faithful, Brothers Forever" Recipient 2008 Us TOO Intl., Inc., Prostate Education & Support Network 1st “Edward C. Kaps Hope Award” Recipient 2012 Prostate Cancer Research Institute (PCRI) “Harry Pinchot Award” Recipient 2016 Us TOO Intl., Inc. Certificate for 20 Years Dedication/Inspiration Published papers: “A Wake Up Call To Men & The Women Who Care For Them” JCPCR-06-00189 Volume 6 issue 1 - 2016: http://tinyurl.com/3djfgve “A Prostate Cancer Patient’s 24-Year (1992-2016) Continuing Journey from Diagnosis to Treatment to Recurrence to Mentoring” JCPCR-04—201604 Volume 4 issue 4 – 2016: http://tinyurl.com/hcxuxv9 “Newly Diagnosed with Prostate Cancer? - A Mentor/Patient Discussion” May 23, 2017 Biomedical Journal of Scientific & Technical Research (BJSTR) http://biomedres.us/pdfs/BJSTR.MS.ID.000110.pdf “Prostate Cancer Advocacy and Mentoring Support” – published November 22, 2017 in the journal “Holistic Approaches in Oncotherapy” HAOT-17-OPN-0004 1.1 (2017): 14-15; https://scientiaricerca.com/srhaot/pdf/SRHAOT-01-00003.pdf Link to comment Share on other sites More sharing options...
This topic is now archived and is closed to further replies.