Admin Posted August 29, 2017 Share Posted August 29, 2017 Volunteers needed: New study: Needs of men with advanced prostate cancer. Miranda Xhilaga and Wendy Winnall (both of Prostate Cancer Foundation of Australia (PCFA)) are starting a study of what men with advanced prostate cancer think about the treatment decisions available to them. If: • your cancer is out of the prostate (metastatic); and • ordinary hormone therapy (ADT) is not enough to keep your PSA in check (castrate resistant or hormone resistant); Miranda and Wendy would love to interview you in Phase 1 of their study. How to let Miranda and Wendy know Just reply to this email with Name, Address, and phone number. Wendy and Miranda will get in touch. (Address is needed because a variety of men are needed from city, regional and rural locations.) The Study The Lay title is: Investigating treatment preferences of patients with advanced and metastatic prostate cancer. The scientific title: A discrete choice analysis of patient preferences for the treatment of metastatic castration-resistant prostate cancer in Australia. A lay description of the project: We are looking at ways to gather a large number of views from people on what they think about benefits and risks of various treatment options. This type of research is called ‘Patient Preference Research’. This may help those who assess new treatment options to understand how people value certain benefits and risks of drugs. Below is more specific information for you, to help in identifying men who may be a very good fit for this study, that we may be able to specifically invite to be part of the interviews. Scientific aims: To develop a greater understanding of mCRPC patients’ treatment preferences, focussing on; 1) the specific treatment attributes that men with mCRPC value; 2) the relative importance of these treatment attributes; and 3) the risk-benefit trade-offs that characterise patients’ choices around treatment options. The project consists of two phases. Phase 1 will recruit 14 men with advanced prostate cancer for in-depth interviews about their experiences living with advanced prostate cancer, its symptoms, treatments and side effects from treatments. Information from phase 1 will be used to develop the questions used in phase 2. The second phase is a cross-sectional survey study for 100 men with advanced/metastatic castration-resistant prostate cancer. Currently, we are recruiting for phase 1 only.The information from this survey will give us a greater understanding of the needs and preferences of patients with this advanced stage of prostate cancer. The overall aim is to understand the decision-making process by these men, what is important to them and how they manage their treatment options. Although patient preference research itself is not new, it has not yet been used to understand the experience of Australian men with advanced prostate cancer. Link to comment Share on other sites More sharing options...
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