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  1. COMMUNITY

    1. Announcements, meetings and other resources

      Including why this site is not for newly diagnosed low-risk men trying to select an initial treatment.

      600
      posts
  2. ADVANCED PROSTATE CANCER FORUMS

    1. Primary hormone therapy

      Early or late, long or short, intermittent or continuous, radiation or not, one or more agents (ADT1, ADT2, ADT3, ...)

      199
      posts
    2. Secondary hormone therapy

      When primary hormone therapy fails, this may be the next step.

      72
      posts
    3. Castrate Resistant Prostate Cancer

      CRPC - Testosterone is at castrate level, but the cancer is again advancing.

      91
      posts
    4. Metastatic

      Evidence is found in bones or soft tissue through imaging or pain.

      92
      posts
    5. Very high risk

      Men with very high risk may need more aggressive treatment than most. What indicates very high risk?

      23
      posts
    6. New agents

      Drugs and other treatments of the future - under trial or newly approved.

      195
      posts
    7. Every little bit helps

      Some drugs given for other conditions have anti-cancer effects.
      Some foods have anti-cancer effects.
      Exercise certainly helps
      An anti-prostate cancer cocktail may be in order.

      150
      posts
    8. Radiation, diagnostic imaging, bones and other prostate cancer topics

      All types of radiotherapy, diagnostic imaging, other diagnostics and anything else on prostate cancer not covered in other forums.
      (If it's not about prostate cancer it should be in The Lounge.)

      236
      posts
    9. Articles on other sites

      These articles are not on JimJimJimJim.com. Click on a link in one of these topics and you will be taken to another site where we have no control over what is posted.

      306
      posts
  3. MEMBER'S STORIES AND NEEDS

    1. My story

      Members tell of their own history.

      343
      posts
    2. Any suggestions?

      What should I ask my doctor about on the next visit?

      106
      posts
    3. The lounge

      Any topic you like goes in here.
      No defamation, please.
      Nothing offensive, please.

      341
      posts
  • Posts

    • Barree
       Not to be missed February 20th 2018   Associate Professor Michael Hofman is coming to Prostate Heidelberg in Melbourne to address members on  ”Diagnostic & Treatment Paradigms using  PET  Scans” We have some seats to spare for this Meeting and we extend an invitation to members of our Advanced Group who might be in the Melbourne area on this day to join us for this special event. It’s free - morning tea will be provided but please book in advance by phoning  Barry  0400 662 114  or  emailing  prostateheidelberg@gmail.com   Associate Professor Hofman is a nuclear medicine physician at the Centre for Molecular Imaging and Cancer Imaging at the Peter MacCallum Cancer Centre in Melbourne, this is Australia's only public hospital dedicated to cancer treatment, research and education.   He is currently involved in the multi-centre randomized clinical trial of Gallium 68 PSMA PET Scans and the trials of the game changing Lutetium 177 PSMA therapy which is about to commence Australia wide.  These trials are cutting edge imaging / treatments for Advanced Metastatic Prostate Cancer. Associate Professor Hofman is one of Australia’s — and possibly one of the World’s — leading physicians specializing in Pet & Radio Tracer Scans & Neuroendocrine Tumors & Theranostic treatments like Lutetium177 .       Where : - The Uniting Church Meeting Room,  Sneddon  Street, Ivanhoe  - 10.00am sharp  There is a car park adjoining the rooms.  Parking is free but it can get busy at times. If you can make it don’t miss this golden opportunity to hear Associate Professor Michael Hoffman’s address on these ground - breaking treatments Presented by PROSTATE HEIDELBERG - CANCER SUPPORT GROUP                    We are Proudly Affiliated with the Prostate Cancer Foundation of Australia and the Cancer Council of Victoria    PO  Box 241  Ivanhoe  Vic    3079 Email :- prostateheidelberg@gmail.com   Web Site ttp://www.prostateheidelberg.info/
    • Sisira
      Chuck, This is a very good point on Avodart. I will follow your advice and take it on every third day. I pay for all consultations, treatments and drugs out of my own money like many others who can afford to do it. In my country ( Sri Lanka )government hospitals are full of patients and there are long waiting lists. But if you spend your money here, you have 100% freedom and your choice at any time subject to the available resources and expertise within the country. I also would like to ask why almost all ( known to me in US) who take Avodart, take it daily so long as they use it? Don't they know about its half life? By the way in which country are you living at present? Thank you for writing back to me. Best regards Sisira
    • Charles (Chuck) Maack
      Patrick, since dexamethasone is one 0.5mg tablet taken once daily versus the two 5mg prednisone tablets taken daily with Zytiga, this may interest you and other readers:   Dexamethasone a Better Partner for Abiraterone Than Prednisolone   http://theoncologist.alphamedpress.org/content/20/5/e13.full   http://www.ncbi.nlm.nih.gov/pubmed/25314055   By the way, I was successful with Zytiga/abiraterone acetate for just a few months short of six years.  
    • Charles (Chuck) Maack
      Hello Sisira,   If you have been taking dutasteride/Avodart daily for 4 to 6 months, it will have established itself in your system.  In so doing, you can then change to taking the 0.5mg capsule every other, or even every third day and it will remain just as effective as daily because of its long half-life.  This can be a consideration in cost saving if you don’t have health insurance coverage for oral medications.   The half-life of Avodart is 5 weeks, and it can take 4 to 6 months for the medication to be totally eliminated from the system once it is stopped.   See: http://www.drugs.com/pro/avodart.html  and scroll down to “Pharmacokinetics”
    • Sisira
      Congratulations to both 25+ Heroes ! My admiration and tribute to Chuck for his unparalleled service as a Prostate Cancer Activist,Advocate, and an excellent Mentor. Immediately after my diagnosis in March 2015 for GS9 PCa - T2c No Mx @ 69 Yrs, I hit my PCa as hard as possible with the multimodal protocol RRP + IMRT + ADT2 ( Zoladex 10.8mg continuously for 2 years ). My PSA before RRP was 7.9 ng/ml and since April 2015 up to now has remained at 0.008ng/ml ( checked every 3 months ). Presently I continue with 1 capsule Avodart per day, Vitamin D3 4000IU per day, well balanced diet without red meat and dairy products, some good supplements recommended by Dr.Charles Myers ( oncologist ) and daily physical exercises for 1.5 hours. My other metabolic functions too are being monitored carefully and i have no other problems.  25+ is a good goal setting for me and thank you very much Chuck for your inspiring post and also Patrick for joining the Select Band of PCa survivors.  May god bless you both to live as long as you wish! Sisira
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