Agenda Friday 14 December 2018
Today will just be a roundtable.
The Brisbane Prostate Cancer Support Group used to have a singalong for the Christmas meeting. The star attraction was The Prostate Song sung by a local Brisbane man.
I went looking for it on YouTube for this meeting, but could not find it.
But, having twice been to theatre in the past few months with my friendly colorectal surgeon, this tickled me:
You must dial in - we do NOT dial you.
Landline - Anywhere in Australia - 25 cents 1300 663 845 (landline call from anywhere in Australia) (cost 25 cents) 7701# Conference number 7701# Password
Mobile phone - only inside these major capital cities - your phone plan cost Perth (mobile call from inside Perth see warning below) 08 6103 8751
Brisbane (mobile call from inside Brisbane see warning below) 07 3166 2169 Sydney (mobile call from inside Sydney see warning below) 02 9438 7077
Canberra (mobile call from inside Canberra see warning below) 02 6112 6899 Melbourne (mobile call from inside Melbourne see warning below)
03 9948 2088
Adelaide (mobile call from inside Adelaide see warning below) 08 7002 8702 7701# Conference number 7701# Password
Maybe you haven't had access to the agenda or you have late breaking news you would like to share. Tell the chairman here at the beginning of the meeting that you would like to speak, and he will fit you in - probably later, perhaps right now if that suits.
Roundtable - new stories, updates, questions
Any man who wishes is welcome to contribute here.
The Chair will declare the formal part of the teleconference closed at his discretion, perhaps around 11am. The teleconference lines will be kept open until at least 11:30 for anyone who wishes to continue discussions, update his health, or just chat.
Any topic you like - topics we didn't reach, something discussed earlier you wish to comment on, an update on your health, how your new boat is going, moaning about the weather, anything that you wish to say.
This Community does not give medical advice. No members are authorised to give medical advice. Ask your doctor if you hear anything here that you think may be related to your treatment.
9:30am - 11:00am Eastern Standard Time (Queensland)
The formal phone-in meeting ends after 90 minutes.
The lines are kept open for up to an hour after that for members to informally chat.
Daylight savings times
Sydney, Melbourne, Hobart: 10:30am Adelaide, 10:00am
Perth 7:30am Winter times Brisbane 9:30am
Sydney, Melbourne, Hobart 9:30am Adelaide 9:00am
Daylight saving ends first Sunday in April Daylight saving starts first Sunday in October
Mobile phone warning
The costs of mobile calls are nothing to do with the Advanced Prostate Cancer Support Group or with PCFA. They are between you and your phone provider (Optus, Telstra, Virgin, Vodafone, etc).
If you dial one of the capital city numbers given above from a mobile phone, the cost to you will be the cost on your mobile phone plan. If your plan gives you free, or low cost local calls, and you are in one of these cities, it should be free, or a local call. If your plan gives you free, or local cost national calls that should work too.
Be sure - call your provider, give the number you might be calling, and check the cost for you to call that number.
We want many voices to be heard. If you are a member listed to speak below, the chair will probably expect you to take no more than about 5 minutes on presentation so there is plenty of time for others to respond.
Special Guest Speakers are invited to speak for 10-15 minutes, then field questions.
House - radio, TV, computer, pets, other phones, conversation Yourself - mute button, or mouthpiece away from mouth Phone - call waiting off (#43#), Mute button or hang up to leave the room. No mute button? ##4 to mute, ##5 to unmute. Cordless phone - don't carry, put on folded handkerchief to limit reverberation Other calls - Please do NOT use call waiting or another line on the same phone to take another call - members around Australia are left listening to your 'hold' music until you return.
Please do NOT use a speaker phone, unless you are very good at keeping it Mute, and at lifting and using the hand piece when you wish to join in the conversation. Mobile phone
You will need enough charge for the length of the call, or take the call with your charger plugged in. Speaking Speak clearly into mouthpiece in ordinary voice.
Say who you are when signing in, and each time you speak.
Listen for the gavel. The Chair may need to interrupt.
It's a meeting of 20 people, not a simple phone conversation. If you are not one of the two people in the particular conversation at the time, keep your mute button down and let others contribute.
Help the secretary by later emailing details for the minutes.Restarting You may hang up and sign in again as many times as necessary. Sometimes we may have to restart the meeting - dial in again. With everyone calling at once you may need to try more than once.
Future phone-in support group meetings
Fourth Friday of each month, except:
January (One week late for Australia Day, making2 meetings in February)
December (One week early for Christmas)
Phone-in support group meeting dates 2019
1 February (one week late for Australia Day)
20 December (one week early for Christmas)
Changes or questions
If you wish to update us about any changes in your health or treatment, or have a question you would like answered or discussed, or you would like to talk about joining a teleconference group, let us know. Then we can put it high on the agenda so it doesn't get lost - just reply to this email, or use Contact Jim on JimJimJimJim.com.
This message has been sent to you because you are a member of the Australian Advanced Prostate Cancer Support Group.
Visit JimJimJimJim.com and click on Contact Jim if this is a problem.
Recently had PSA Test, down from 61 to 24! Have now had second Lucrin Depo 45mg 6 month injection. Very sore bum for a couple of days but all is well now. Have another PSA test in June 2019, fingers crossed!!
Certainly wishing you success with docetaxel. Possibly enzalutamide or abiraterone might work again following completion of the docetaxel series. Otherwise, it appears cabazitaxel/Jevtana may be the next medication to which to move.