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  1. COMMUNITY

    1. Announcements, meetings and other resources

      Including why this site is not for newly diagnosed low-risk men trying to select an initial treatment.

      816
      posts
  2. ADVANCED PROSTATE CANCER FORUMS

    1. Primary hormone therapy

      Early or late, long or short, intermittent or continuous, radiation or not, one or more agents (ADT1, ADT2, ADT3, ...)

      255
      posts
    2. Secondary hormone therapy

      When primary hormone therapy fails, this may be the next step.

      88
      posts
    3. Castrate Resistant Prostate Cancer

      CRPC - Testosterone is at castrate level, but the cancer is again advancing.

      165
      posts
    4. Metastatic

      Evidence is found in bones or soft tissue through imaging or pain.

      366
      posts
    5. Very high risk

      Men with very high risk may need more aggressive treatment than most. What indicates very high risk?

      55
      posts
    6. New agents

      Drugs and other treatments of the future - under trial or newly approved.

      251
      posts
    7. Every little bit helps

      Some drugs given for other conditions have anti-cancer effects.
      Some foods have anti-cancer effects.
      Exercise certainly helps
      An anti-prostate cancer cocktail may be in order.

      157
      posts
    8. Radiation, diagnostic imaging, bones and other prostate cancer topics

      All types of radiotherapy, diagnostic imaging, other diagnostics and anything else on prostate cancer not covered in other forums.
      (If it's not about prostate cancer it should be in The Lounge.)

      394
      posts
    9. Articles on other sites

      These articles are not on JimJimJimJim.com. Click on a link in one of these topics and you will be taken to another site where we have no control over what is posted.

      397
      posts
  3. MEMBER'S STORIES AND NEEDS

    1. My story

      Members tell of their own history.

      713
      posts
    2. Any suggestions?

      What should I ask my doctor about on the next visit?

      247
      posts
    3. The lounge

      Any topic you like goes in here.
      No defamation, please.
      Nothing offensive, please.

      471
      posts
  • Posts

    • stevecavill
      VICTORIAN  MEMBER - GET TOGETHER   It is great to put faces to names at our local catch-up meetings.  We are well overdue for a  Face to a Name Meeting for Victorian members!  It was great to see 14 or so members at our last catch-up including a few new faces.  So our next get together will be held at Glenroy RSL on Saturday 21st March at 11.30 for 12.00 pm lunch.   The RSL is located at 186 Glenroy Road, Glenroy.    Members and partners from anywhere in world visiting Melbourne are welcome to attend.    We will as in the past meet in the reception area around 11.30 and then move into the bistro at 12.00 where they have quite a good array of food and  an extensive Seniors menu all at reasonable prices.  These meetings are simply a chat over a bite to eat for members and their partners and carers to share thoughts and ideas relating to treatment medication and support.   The Glenroy RSL was initially chosen because of its  central location. It is readily accessed from the Hume Highway and the M80 - Metropolitan Ring Road with free parking available on site and we have always found the staff to be friendly and cooperative.    Please note this date in your Diary now "21 March 2020" and please don't forget to reply and let us know if you are coming - so we can estimate numbers for the bistro.  You can reply in this forum or email Steve at cavillsteve@gmail.com   Alan, Barry and Steve
    • John B
      Thanks Barry thats helpfull and I will raise the issues you mention with my doctors. Regards   John
    • Barree
      ◦ Hi John,  In respect to your ongoing treatment, I am not a doctor and not privy to the information your Doctors have about your case so I find it difficult to comment constructively other than to say that SBRT is only as good as the experience that the radio oncologist has who is supervising and planning your treatment.   When discussing radiotherapy to a tumor which is very close to your bowel - has your radiation oncologist mentioned the possibility of using SpaceOAR.It is relatively new. It is used to expand the gap between the bowel and the tumor when they are in close proximity and you are about to be treated with radiotherapy. It significantly reduces the risk of side effects of radiation impingement upon the bowel. If you have not heard of it, I suggest you ask your Rad Onc whether or not it might be useful in your particular case. Another thing I feel worthy of mention at this stage - and that is the type of ADT treatment used at the commencement of your treatment. This is something you could ask your medical oncologist about; it’s one of the newer ADT treatments - Firmagon. Whilst is has more side effects than the normally used antagonists it is very effective. It quickly drops the testosterone level to zero and prevents the flair associated with other hormone treatments, even if you do receive pre treatment with Androcur or one of the other anti androgen's such as Casadex (bicalutamide).Its worthy of consideration. Cheers , Barry
    • John B
      Thanks Barree Things have moved on a bit further since my post. I saw a medical oncologist yesterday and he had spoken to the RT Oncologist and other doctors in the team and was proposing that the one lymph node be treated by RT ablation becasue of its proximety to the bowel, then start hormone therapy, then after a couple of months radio therapy to the area of the other two lymph nodes which are above the bladder and would not risk damage to the bladder or bowel. He was advising it would be worth doing the localised treatment but interestingly the Surgeon (who was not involved in the discussion) has seperately just advised hormone therapy.   All a bit confusing, but as long as the two localised treatments are not going to cause other problems it would seem worth dealing with the three problem Lymph nodes definatively and then using hormone treatment to hold off any other developments.   I would welcome any further comments you have.   Many thanks   John
    • Barree
      Hi John, I think the idea of treating you with ADT at this point in time is probably quite reasonable. However prior to committing to radiotherapy, I would wait and see what impact the ADT has. It might do the job. If not, in addition to radiotherapy there are numerous options available to treat the remaining three lymph nodes. Where there is lymph node involvement, systemic treatment with a taxane such as docetaxel  is also given consideration. Cheers , Barree
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