The mist surrounding my weight loss has cleared at last. I was eventually diagnosed with coeliac disease. I am now on a gluten-free diet, and my weight and appetite have returned to normal.
Nevertheless, I was baffled why, at the age of 81, I had suddenly developed coeliac disease. Well, I have also solved that mystery - and the answer may come as a surprise to some of you. I have just found this paper https://www.ncbi.nlm.nih.gov/pubmed/7200931 which shows the strong link between low testosterone levels (the main purpose of ADT) and coeliac disease. As I always suspected, my ADT was, indeed, doing me more harm than good. Zoladex served me well in getting my PSA down below measurable levels, but they have now remained unmeasurable for more than 8 years. I also have a whole raft of other symptoms associated with low testosterone levels, including numb hands and fingers, pale complexion, memory loss, and several other things. I abandoned ADT in January this year, and I will be seeing an endocrinologist shortly to see if we can restore a safe testosterone level. Hopefully, this will ease some of my symptoms, and may even CURE my coeliac disease!
I received a reply fro Louise Emmett - her response -
"There are a couple of trials due to start in that space - but not going yet - probably next year. So the Chemotherapy and LHRH planned sounds a good place to start.
We do self funded treatment as well at Vinnies - but that is not yet shown to be better than chemo and currently all our trials are for men in whom treatment has failed." So I head off to the Oncologist at Westmead 24th October to get things going - that is, Chemo and ADT regime. Have had the ADT implant done - on pain killers and having second shot of radiation on a still painful spot on Tuesday.
I have had the good fortune to attend a couple of PCRI Conferences in LA, where Dr Moyad is the Moderator.
He definitely believes a heart healthy diet is a prostate healthy diet. (Mediterranean diet)
If you have a healthy diet a great majority of the time, this enables you to eat what ever you like, for example, you go to dinner with friends or cake with coffee on a special occasion.
He definitely not suggesting whatever you like whenever you like.
Good to see diet and nutrition being discussed here. Impressive as this guy is I feel like he is kind of telling us what we want to hear, eat what makes you happy is a very attractive approach but not exactly scientific or evidence based. In fact there is lots of evidence in support of very specific dietary approaches like eating more soy products, more fresh fruit and vegetable, less wheat, dairy, sugar, alcohol and red meat. I don't think anyone should be dogmatic about it but taking even small steps in these directions seems very likely to have real benefits. There is also plenty of evidence around cooked tomato (lycopene), turmeric, green tea, broccoli and broccoli sprouts, that would all be fairly easy to incorporate into your diet so I'm not sure why there isn't more promotion of some fairly simple dietary guidelines.