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  1. COMMUNITY

    1. Announcements, meetings and other resources

      Including why this site is not for newly diagnosed low-risk men trying to select an initial treatment.

      666
      posts
  2. ADVANCED PROSTATE CANCER FORUMS

    1. Primary hormone therapy

      Early or late, long or short, intermittent or continuous, radiation or not, one or more agents (ADT1, ADT2, ADT3, ...)

      201
      posts
    2. Secondary hormone therapy

      When primary hormone therapy fails, this may be the next step.

      77
      posts
    3. Castrate Resistant Prostate Cancer

      CRPC - Testosterone is at castrate level, but the cancer is again advancing.

      133
      posts
    4. Metastatic

      Evidence is found in bones or soft tissue through imaging or pain.

      231
      posts
    5. Very high risk

      Men with very high risk may need more aggressive treatment than most. What indicates very high risk?

      31
      posts
    6. New agents

      Drugs and other treatments of the future - under trial or newly approved.

      212
      posts
    7. Every little bit helps

      Some drugs given for other conditions have anti-cancer effects.
      Some foods have anti-cancer effects.
      Exercise certainly helps
      An anti-prostate cancer cocktail may be in order.

      151
      posts
    8. Radiation, diagnostic imaging, bones and other prostate cancer topics

      All types of radiotherapy, diagnostic imaging, other diagnostics and anything else on prostate cancer not covered in other forums.
      (If it's not about prostate cancer it should be in The Lounge.)

      277
      posts
    9. Articles on other sites

      These articles are not on JimJimJimJim.com. Click on a link in one of these topics and you will be taken to another site where we have no control over what is posted.

      327
      posts
  3. MEMBER'S STORIES AND NEEDS

    1. My story

      Members tell of their own history.

      471
      posts
    2. Any suggestions?

      What should I ask my doctor about on the next visit?

      175
      posts
    3. The lounge

      Any topic you like goes in here.
      No defamation, please.
      Nothing offensive, please.

      377
      posts
  • Posts

    • Charles (Chuck) Maack
      Dear Pinks,   I suggest you get an appointment (probably will be at your expense) with Dr. Manish Kohli at the Mayo Clinic in Rochester, MN.  Here is info regarding this Medical Oncologist wherein Prostate Cancer is among his specialties.  If/when making an appointment, and if you have the opportunity, explain that you are seeking the advice of Dr. Kohli regarding your father in Orissa, India who has been diagnosed with advanced, Gleason 9, prostate cancer, and it is paramount to have as early appointment with him as possible.  When you open the following, you can click on “Request an Appointment” in the upper right hand corner.   https://www.mayoclinic.org/biographies/kohli-manish-m-d/bio-20055166    You could save the following for your visit with Dr. Kohli:   Dear Dr. Manish Kohli, I have made this appointment with you regarding my father recently diagnosed with advanced, Gleason 9, prostate cancer and who lives in Orissa, India.  He just received an orchiectomy and has been prescribed bicalutamide pending further imaging results and determining what to do next; possibly chemotherapy. With this distance between us and my wanting to do all in my power to make sure the treatment protocol determined for him is reasonable, my hope was with a review of his diagnostics, biopsy results, and imaging to date, you would help me with your review and advice as to whether his current and planned treatment is considered by you as reasonable protocol for my father, or have other suggestions to pass on to my sister and brother-in-law in Orissa to discuss with my father’s treating physician.  With your review and suggestions in this matter, you would help set my concern at ease.  
    • alanbarlee
      Great Barry - count Judy and me in!   Alan
    • Barree
    • Pinks
      Thanks again Chuck. I will save your email address. I would like to thank you for providing guidance and support to people like me and others.  I have not reached out to Mayo yet. I heard Dr Kwon (?) is pretty good doctor here. I hope we could get in touch with him. Will do that next week.    At this point we are still thinking whether to go for chemo or not. More to be discussed with Oncologist next week. I will further update soon.       Take care. 
    • seafriend40
      Have spoken to my GP and requested a PET SCAN, was informed it could only  be requested by a Specialist, contacted Oncologist, who had told me that with PSA at 61,"most likely I was riddled with cancer", wife was most upset when I told her!1Oncologist apparently is"upset" at my attitude, but am seeing him again next Monday, all i'm wanting is referral for PET SCAN!! Can't understand his attitude!!
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