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  1. COMMUNITY

    1. Announcements, meetings and other resources

      Including why this site is not for newly diagnosed low-risk men trying to select an initial treatment.

      840
      posts
  2. ADVANCED PROSTATE CANCER FORUMS

    1. Primary hormone therapy

      Early or late, long or short, intermittent or continuous, radiation or not, one or more agents (ADT1, ADT2, ADT3, ...)

      255
      posts
    2. Secondary hormone therapy

      When primary hormone therapy fails, this may be the next step.

      88
      posts
    3. Castrate Resistant Prostate Cancer

      CRPC - Testosterone is at castrate level, but the cancer is again advancing.

      165
      posts
    4. Metastatic

      Evidence is found in bones or soft tissue through imaging or pain.

      371
      posts
    5. Very high risk

      Men with very high risk may need more aggressive treatment than most. What indicates very high risk?

      55
      posts
    6. New agents

      Drugs and other treatments of the future - under trial or newly approved.

      251
      posts
    7. Every little bit helps

      Some drugs given for other conditions have anti-cancer effects.
      Some foods have anti-cancer effects.
      Exercise certainly helps
      An anti-prostate cancer cocktail may be in order.

      168
      posts
    8. Radiation, diagnostic imaging, bones and other prostate cancer topics

      All types of radiotherapy, diagnostic imaging, other diagnostics and anything else on prostate cancer not covered in other forums.
      (If it's not about prostate cancer it should be in The Lounge.)

      399
      posts
    9. Articles on other sites

      These articles are not on JimJimJimJim.com. Click on a link in one of these topics and you will be taken to another site where we have no control over what is posted.

      399
      posts
  3. MEMBER'S STORIES AND NEEDS

    1. My story

      Members tell of their own history.

      720
      posts
    2. Any suggestions?

      What should I ask my doctor about on the next visit?

      254
      posts
    3. The lounge

      Any topic you like goes in here.
      No defamation, please.
      Nothing offensive, please.

      472
      posts
  • Posts

    • Admin
      I’m writing to you from my home office at Mooney in regional New South Wales, feeling a little shell-shocked, like most Australians right now. PCFA is here for you and most of us are working remotely to ensure that we continue to provide the services and support for men and their families at this most difficult time.   We here at PCFA have turned our minds to two urgent priorities – stepping up our services and maintaining community funding for our vital work to provide nurses, awareness, and support.    With this in mind, I’d like to seek your input and suggestions on how Coronavirus is impacting you and your family, and what we might be able to do about it.   If you have five minutes to spare, Jeff and Deb and I would greatly appreciate your response to this short survey.   https://www.surveymonkey.com/r/DL7WKX8   I would also be very pleased if you could circulate this email to all your support group members as it would be great for them to have the opportunity to have an input via our survey which is anonymous.    As always, thank you in advance for letting us know your thoughts. I have also greatly appreciated the support, encouragement and advice I have received from the PCFA support groups over the past few weeks since taking on this important role. Without the ability to attend support meetings at this time I am also trying to contact many of you by phone over the next few weeks. Also please feel free to invite me to any online meetings you may be organising in the next few weeks or months, or contact me directly by email or phone.   Kind regards, Jim   The Hon. Jim Lloyd   |   National Support Groups Executive
    • Brian Moody
      Cheers Allan,   Thank you very much, for such an in depth reply   Brian M
    • Admin
      A more complete video with Dr Declan Murphy and Dr Michael Hofman outlining the results of their trial for doctors. Dr Alicia Morgans is interviewing. https://www.urotoday.com/center-of-excellence/imaging-center/video-lectures/video/mediaitem/1685-psma-pet-ct-imaging-for-staging-high-risk-prostate-cancer-prior-to-curative-intent-surgery-or-radiotherapy-propsma-michael-hofman-and-declan-murphy.html?utm_source=newsletter_7661&utm_medium=email&utm_campaign=news-and-noteworthy-in-march-2020-propsma-diagnostic-imaging-pout-trial-and-covid-19-impacting-gu-cancer-care The article is not on this site. If you click on the link, you will be taken to a site where we do not control the content. So, please be careful about what you read there, and ask your doctor about anything you read. You may need to subscribe to the site to view the article. If the site is temporarily or permanently unavailable, you may receive an error message.
    • Kevin Martin
      mumof2, I can only give you my story, referred by GP to Urologist 1/4/16, seen Urologist 20/4/16 where he told me after DRE that I had PC and had to have biopsy to find the extent of it. Had a biopsy 3/5/16. Bottom line a Gleason 4+5=9. Had a Nuclear bone scan 30/5/16 and an abdomen and pelvis scan on 2/6/16. Seen rad/ oncologist 16/6/16,  started Lucrin injections on 23/6/16 and Enzalutemide caps 24/6/16. I had 2 pelvic lymph nodes that had pc which were zapped with radiation that started 10 weeks after hormone treatment started. I can't comment on where it could have went after 5 months, that would only show by him having another scan I wish you and your husband all the best. Regards, KM
    • mumof2
      we have been waiting months to get everything started and now it looks like we have a tentative date of the 16th april to start radiotherapy...so 5 months in total before any treatment...that seems so long to me is it the same for everyone? I am scared in all this time it has been spreading..
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