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  1. COMMUNITY

    1. Announcements, meetings and other resources

      Including why this site is not for newly diagnosed low-risk men trying to select an initial treatment.

      655
      posts
  2. ADVANCED PROSTATE CANCER FORUMS

    1. Primary hormone therapy

      Early or late, long or short, intermittent or continuous, radiation or not, one or more agents (ADT1, ADT2, ADT3, ...)

      201
      posts
    2. Secondary hormone therapy

      When primary hormone therapy fails, this may be the next step.

      77
      posts
    3. Castrate Resistant Prostate Cancer

      CRPC - Testosterone is at castrate level, but the cancer is again advancing.

      133
      posts
    4. Metastatic

      Evidence is found in bones or soft tissue through imaging or pain.

      162
      posts
    5. Very high risk

      Men with very high risk may need more aggressive treatment than most. What indicates very high risk?

      31
      posts
    6. New agents

      Drugs and other treatments of the future - under trial or newly approved.

      212
      posts
    7. Every little bit helps

      Some drugs given for other conditions have anti-cancer effects.
      Some foods have anti-cancer effects.
      Exercise certainly helps
      An anti-prostate cancer cocktail may be in order.

      151
      posts
    8. Radiation, diagnostic imaging, bones and other prostate cancer topics

      All types of radiotherapy, diagnostic imaging, other diagnostics and anything else on prostate cancer not covered in other forums.
      (If it's not about prostate cancer it should be in The Lounge.)

      277
      posts
    9. Articles on other sites

      These articles are not on JimJimJimJim.com. Click on a link in one of these topics and you will be taken to another site where we have no control over what is posted.

      319
      posts
  3. MEMBER'S STORIES AND NEEDS

    1. My story

      Members tell of their own history.

      431
      posts
    2. Any suggestions?

      What should I ask my doctor about on the next visit?

      158
      posts
    3. The lounge

      Any topic you like goes in here.
      No defamation, please.
      Nothing offensive, please.

      376
      posts
  • Posts

    • Charles (Chuck) Maack
      I will be posting the results of my targeted radiation far and wide once the radiation is completed and can determine subsequent PSA level.  I would expect that if successful, and if cancer is not located anywhere else not having been identified in my specialized radiotracer/isotope imaging, my PSA should show up in ultrasensitive reading below 0.01ng/ml.  I pray that will be so! 
    • Charles (Chuck) Maack
      Merv, you definitely need to see a Medical Oncologist to perform diagnostics, imaging, and determining you best course of action based on your status from these tests.  I tried to find such a Medical Oncologist near you but with no success.  Closest I found was in South Brisbane at the Mater Medical Centre, 293 Vulture St., with haematologist Kerry Taylor.  See more about him here: http://www.blood2018.com/program/speakers/kerry-taylor.html so this would mean a trip to him after calling and arranging an appointment while at the same time advising that in view of this having to require travel from your location to South Brisbane you would want appropriate testing and imaging while at that appointment with anticipated treatment options discussed and begun.  And ask if this could be arranged and the amount of time/days you may have to remain close by the Mater Medical Centre to accomplish what you perceive are necessary requirements based on the years you have been living with high prostate cancer PSA levels and inadequate physician expertise or care.  Not sure if that can be arranged for you, or if others monitoring this forum know of Medical Oncologists closer to Bundaberg than Brisbane.  For certain do not continue with the physicians you have been seeing since it is absolutely obvious they have no experience regarding understanding and treating prostate cancer.  You need expert help and you need it in near time.  If any reading this post live in Brisbane and could provide a place for Merv to stay should he come to Brisbane for an appointment and treatment, please post here your willingness to do so.
    • tonymax
      Chuck,   Good to hear from you and thanks for all that info. My ADT journey is now at the 15 year mark (Gleason 8) after failed radical in 2003 - age now 72. Continuing Lupron and just over 4 years on Enza now. Enza on a clinical trial - the only way I can access it affordably in Australia. I cannot change my treatment regime and stay on the trial so am constrained in that sense. My PSA continues just under or just over 1.0 Was put on (and remain on) Metformin for type 2 diabetes before starting Enza. Am getting more benefit from Enza than most of the guys on the trial. Some recent comments that Metformin may help to reactivate Enza - not sure about that. My MO mentioned last visit that he has another patient still going strong on Enza after 8 years. Will check to see if he is also on Metformin. My pathology is very good although Vit B12 is a bit low - presume due to Metformin from your comments.   Only lesion in my pelvic lymph node - rest of body clean (CT and bone scans) after 15 years. These scans pretty primitive but still hard to get more sophisticated ones in Aust. I am amazed that the cancer may not have spread from the one location in 15 years! My plan is when Enza starts to fail I consider perhaps some Abiraterone or some form of radiation to the lymph node. In the meantime will stick with the Enza and clinical trial. Good luck with your radiation treatment and please keep me posted on your progress. Very happy to follow in your footsteps on this one.   Regards           Tony  
    • Colin Glover
      Hi Darby I hope your doing much better. I felt I had to say something. I started on Lucrin a year ago today. My adverse reaction has been minimal. No hot flushes except maybe a little in bed sometimes. Psa has continued to drop 3.6 last time. However I took up the Manplan soon after and continue to do it at home.   It has been very beneficial and I'm sure its played a big part in my success so far. Very little weight gain, largely muscle. One thing that we have done for the last 6 and a half years, since my wife's brain tumor discovery, is make a juice of beetroot, carrot, celery, ginger and apples every second morning. I'm sure that has been of great benefit with other changes in our life style. Inspite of my  restricted bladder capacity etc my kidneys are first rate, constipation is not really too much of an issue  and BP is 120/60.   So following an exercise program has been positive for me.   Cheers
    • Sisira
      Dear Marv, I am really sorry about your plight and a couple of others who have had similar experience. You have now become a well informed patient but it may be too late. To hell with those STUPID doctors who have played with your life! Hope you will find a way to fight with this insidious disease and protect your life. Good luck! Sisira  
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