I suggest you get an appointment (probably will be at your expense) with Dr. Manish Kohli at the Mayo Clinic in Rochester, MN. Here is info regarding this Medical Oncologist wherein Prostate Cancer is among his specialties. If/when making an appointment, and if you have the opportunity, explain that you are seeking the advice of Dr. Kohli regarding your father in Orissa, India who has been diagnosed with advanced, Gleason 9, prostate cancer, and it is paramount to have as early appointment with him as possible. When you open the following, you can click on “Request an Appointment” in the upper right hand corner.
You could save the following for your visit with Dr. Kohli:
Dear Dr. Manish Kohli,
I have made this appointment with you regarding my father recently diagnosed with advanced, Gleason 9, prostate cancer and who lives in Orissa, India. He just received an orchiectomy and has been prescribed bicalutamide pending further imaging results and determining what to do next; possibly chemotherapy. With this distance between us and my wanting to do all in my power to make sure the treatment protocol determined for him is reasonable, my hope was with a review of his diagnostics, biopsy results, and imaging to date, you would help me with your review and advice as to whether his current and planned treatment is considered by you as reasonable protocol for my father, or have other suggestions to pass on to my sister and brother-in-law in Orissa to discuss with my father’s treating physician. With your review and suggestions in this matter, you would help set my concern at ease.
Thanks again Chuck. I will save your email address. I would like to thank you for providing guidance and support to people like me and others.
I have not reached out to Mayo yet. I heard Dr Kwon (?) is pretty good doctor here. I hope we could get in touch with him. Will do that next week.
At this point we are still thinking whether to go for chemo or not. More to be discussed with Oncologist next week. I will further update soon. Take care.
Have spoken to my GP and requested a PET SCAN, was informed it could only be requested by a Specialist, contacted Oncologist, who had told me that with PSA at 61,"most likely I was riddled with cancer", wife was most upset when I told her!1Oncologist apparently is"upset" at my attitude, but am seeing him again next Monday, all i'm wanting is referral for PET SCAN!! Can't understand his attitude!!