Agenda - phone-in meeting of Friday 23 August 2013: Dr Farshad Foroudi: Trial of treatment of early metastatic disease

[Admin]

Agenda

 

Disclaimer

This Community does not give medical advice. No members are authorized to give medical advice. Ask your doctor if you hear anything here that you think may be related to your treatment. 

 

Time 

9:30am - 11:00am Eastern Standard Time (Queensland)

The formal phone-in meeting ends after 90 minutes.

The lines are kept open for an hour after that for members to informally chat.

 

Daylight savings times

Brisbane 9:30am

Sydney, Melbourne, Hobart: 10:30am

Adelaide, 10:00am

Perth 7:30am

Winter times

Brisbane 9:30am

Sydney, Melbourne, Hobart 9:30am

Adelaide 9:00am

Perth 7:30am 

 

Dial in 

You must dial in - we do NOT dial you.

 

Full details in email only.

Need help? Contact Jim.

 

Speaking time 

We want many voices to be heard. If you are a member listed to speak below, the chair will probably expect you to take no more than about 5 minutes on presentation so there is plenty of time for others to respond.

Special Guest Speakers are invited to speak for 10-15 minutes, then field questions.

 

Apologies 

Pat Coughlan, Noel Preston, Paul Hobson, Geoff Buttfield

 

Late starters 

Maybe you haven't had access to the agenda or you have late breaking news you would like to share. Tell the chairman here at the beginning of the meeting that you would like to speak, and he will fit you in probably later, perhaps right now if that suits. 

 

No longer alone 

In that haze that is our diagnosis, some of us found ourselves hoping that the doctor had made a mistake somewhere. Peter Renwick of Cairns found on each visit that not only had his diagnosis been correct, but each new visit gave new bad news. PSA rising rapidly, Gleason score upgraded from 9 to 10 ... Peter will tell us his story.

 

Special expert guest speaker

Those of our members who are not yet widely metastatic to bones or other organs have a keen interest in oligometastatic treatment. That is the treatment of the first few metastases, when significantly slowing the disease may be possible.

 

Today's expert guest - Dr Farshad Foroudi is running a trial looking at just that, called POPSTAR.

 

Two of our Melbourne members are currently engaged with Dr Foroudi about involvement in the trial.

 

None of our members outside Melbourne have been offered this experimental treatment. One of our members sought it in Brisbane, but was initially denied by his medical oncologist. The doctor later, after talking to a colleague, relented, and arranged the treatment.

 

We look forward to hearing from Dr Foroudi about treatment of oligometastatic disease, his current trial, and those he has planned.

 

Other updates 

Any man who wishes to update us on his progress is welcome to contribute here.

 

Formal end 

The Chair will declare the formal part of the teleconference closed at his discretion, perhaps around 11am. The teleconference lines will be kept open until at least 11:30 for anyone who wishes to continue discussions, update his health, or just chat. 

 

Informal chat 

Any topic you like - topics we didn't reach, something discussed earlier you wish to comment on, an update on your health, how your new boat is going, moaning about the weather, anything that you wish to say. 

 

Future phone-in support group meetings 

Teleconference meetings are held on the fourth Friday (NOT always the last Friday) of each month (except January, which is one week late) and December (which is one week early). So February may have 2 teleconferences - the delayed January teleconference, and the normal fourth week. In 2013 this means teleconferences on both 1 February and 22 February.

 

Phone-in support group meeting dates 2013

1 February 2013 

22 February 2013

22 March 2013 (not last Friday in month)

26 April 2013

24 May 2013 (not last Friday in month)

28 June 2013

26 July 2013

23 August 2013 (not last Friday in month)

27 September 2013

25 October 2013

22 November 2013 (not last Friday in month)

20 December 2013 (not last Friday in month, not fourth Friday in month)

 

Changes or questions 

If you wish to update us about any changes in your health or treatment, or have a question you would like answered or discussed, or you would like to talk about joining a teleconference group, let us know. Then we can put it high on the agenda so it doesn't get lost - just reply to this email, or use Contact Jim on JimJimJimJim.com.

 

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