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Eric Trebilco's story


Guest Eric Trebilco

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Guest Eric Trebilco

I have two specialist doctors looking after my medical needs, John Preston (Greenslopes Hospital) and Margo Leimann (Princess Alexandra Hospital), and have alternate appointments to these specialists every 3 months.

At the P.A. Hospital, soon after diagnosis, Dr. Simone Wood & Irena Oleinikove intervied me - mainly to see what support I needed to handle my situation & to be available for any of my early questions.

Month and year of diagnosis. Example: June 2009

June 2011

Age at diagnosis. Example 61 years

61

PSA at diagnosis. Example: 7.7

31

Gleason score at diagnosis. (from biopsy) Examples: 7 OR 3+4

4+5=9

Biopsy details. Examples: Positive cores 7/12 (58%) OR (R: 4+5 75%, 4+5 75%, 4+5 95%, 4+3 20%, 3+4 15% L: -, -, -, -, -, 3+4 50%)

Positive cores 6/12

Bone scan result at diagnosis. Examples: Clear OR Metastases in pelvis and lower spine

The bone scan showed multiple skeletal metastatic deposits involving upper thorasic vertebrae, T9, multiple ribs as well as to the left sacroiliac joint and left ilium.

Lymph nodes at diagnosis. Exampl es: Clear OR CT scan shows 2 lymph nodes positive

C.T. Scan of abdomen & pelvis: Evidence of lymph nodal metastases in the mid and lower abdomen as well as in the pelvis with a soft tissue/nodal mass also noted in the presacral region.

Capsular penetration (growth through prostate wall). Examples: None OR MRI shows probable extra capsular extension at left base in midline surrounding seminal vesicles and ejaculatory ducts

The C.T. Scan showed no evidence of obstructive uropathy and no heptic or adrenal metastases. The liver, spleen, pancreas, kidneys and adrenal glands appear normal. There is evidence of bony metastatic disease.

Highest PSA before treatment. Example: 10.4

31

Initia l treatment - hormone therapy. Examples: Zoladex, continuous OR Zoladex + Cosudex intermittent after initial 12 months

Started July 2011 with Zoladex 3 monthly injection under the skin (stomach area), plus a calcium/vitamin D tablet (1 per day as my diet already includes a reasonable amount of calcium).

July 2012, included Anandron tablets (150mg nilutamide, 2 per day for 28 days and thereafter 1 per day), and also the 'low dose' 100mg asprin (one per day) around about this stage.

Lowest PSA after initial treatment. Example: 0.2

2.8

Testosterone after treatment. Examples: 6 nmol/L after 6 months, 15 nmol/L after 18 months

Two months after inclusion of Anandron tablets my testosterone dropped to non-detectable level.

Final paragraphs - anything else you wish to say

Experiencing some treatment side effects such as being tired. Also the anandron tablets affect the eyes somewhat (when moving from strong light to darker areas. Light can look pinkish and detail in darker areas can be harder to see. Wearing sunglasses reduces these problems. For some people it may not be safe to drive a car at night.

Libedo is reduced due to no available tetosterone, but when the right conditions are available, a reasonably strong erection can still happen. Continuing stimuli now produces a "dry" orgasm (most of the usual fluid has been stopped because of the necessary treatment which has shrunk the prostate).

There is presently no bone pain, but the specialist doctors expect in the near future a constant pain will start which will keep me from sleeping. At any bone pain site radiation treatment will be used.

My latest PSA level was 7. With an eventual expected rise to PSA level 10, will likely mean a start to one of the chemo drugs such as Taxotere (docetaxel).

Date updated. Example 23 September 2012

26 September 2012

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