tonymax Posted November 22, 2011 Share Posted November 22, 2011 This guy is certainly trying everything. Might be interesting to find out more details. Would our group be interested in this? Regards Tony Tony I think some of the men would be interested. I have highlighted the different drugs he and his doctors have used to keep him alive. Paul Kienow Hello Friends, I completed my first treatment with Provenge last week. I have the leukapheresis done on Mondays and the infusions at oncologist's office on Thursdays. I did not notice any significant side effects. The needles are large and holding both arms so still for 3 to 4 hours is a little tiring. The infusion is not unlike receiving chemotherapy without the side effects. I have had more migraine headache occurrences since the infusion which may or may not be due to the Provenge. I have been taking the Zytiga since October 12th, after taking one half dose for a week, and I have not noticed significant side effects. I have sinusitis or rhinitis which I attribute to the drug, but no one else believes the association exists. It could be that the moment my resistance drops down a little bit, this is the first place infection sets in for me. I had the same condition with the Taxotere/Avastin chemotherapy two years ago. The standard of care for Zytiga is to take 2- 5 mg doses (not positive about the dose) of Prednisone each day with the Zytiga. Because I dislike the Prednisone, I only took one dose without noticeable side effects. The moment I was scheduled for Provenge, my oncologist stopped the prednisone and added a drug called Inspra (Eplerenone) 25 mg per day. The bottom line is that neither treatment has caused noticeable side effects so far. I am tired but not much worse than from the normal hormone blockade. I continue the Lupron and Avodart with the above treatments. This is my eighth year after being diagnosed with T3b, Gleason 9, in July 2004. The only side effects after mostly on ADT3 (a few short breaks), two cycles of chemotherapy, 82 grey of radiation, testosterone supplementation, and HIFU, is permanent ED and zero libido. Last PSA was 0.17 with a doubling every 3 weeks under ADT3 with Nilutamide. Paul Link to comment Share on other sites More sharing options...
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