tonymax Posted September 14, 2011 Share Posted September 14, 2011 Jim Marshall (not a doctor) said ...These suggested links are now available on a separate part of the site. Find them by clicking on the Links Directory near the top centre of this and every page. Note: these links do not come up in the usual forum search. Instead, you should go to the Links Directory and do a search there. ... end Jim If not already there we should get a series of links to important sites prominently accessible and briefly described on the Community Would include (probably among many others) PCFA Andrology Australia Us TOO (incl advanced pack and advanced support groups, Hotmail library, Inspire site and Prostate Pointers email contact) Prostate Cancer International (Mike Scott USA - Mike was in same working group as Gerry and me in Chicago and I have communicated with him several times since - he runs a great web and forum site) Possibly Gerry Chodak site below Chuck Maack Prostate Pointers contact and his information base Malecare ZERO American Cancer Society NCCN Guidelines (USA) Snuffy Myers Mark Scholz, Dr Lam, Stephen Strum Various UK, Canadian and NZ sites - there is some good stuff in Canada Etc etc Regards Tony Link to comment Share on other sites More sharing options...
Guest SuperFred Posted September 22, 2011 Share Posted September 22, 2011 What about PubMed.com? And PCRI? Link to comment Share on other sites More sharing options...
JimmyToowong Posted September 22, 2011 Share Posted September 22, 2011 Great idea, Tony. I agree with you Fred that PubMed and PCRI should be in. To make the list less daunting, I suggest we divide it up into sections, or even into separate posts, with headings like: Newsletter sites Video sites Advanced sites Newly advanced resources (I am thinking of the UsToo Advanced pack). Link to comment Share on other sites More sharing options...
tonymax Posted September 22, 2011 Author Share Posted September 22, 2011 Fred - agree about PCRI and PubMed. Jimmy - agree about the division. Separate posts seems best to me. Link to comment Share on other sites More sharing options...
tonymax Posted January 17, 2012 Author Share Posted January 17, 2012 I would add The Prostate Advocate which has a mass of stuff from Chuck Maack on prostate cancer including advanced - very valuable. The Links area of the site is too important to be buried in the Lounge - it must be an item on the main menu. What do we need to do Jim to action these Links proposals? Regards Tony Maxwell Link to comment Share on other sites More sharing options...
Popeye Posted August 22, 2012 Share Posted August 22, 2012 Tony; I am new to this forum but I agree links to good sites dealing with this disease are paramount for members. I would like to to reccommend a site called Gregs Legacy. http://kingvalley.wordpress.com/ This is a site operated by Greg Naylor of Victoria. It has been in existence since Greg was diagnosed with terminal cancer four years ago. Greg is currently unwell but his site has invaluable technical and personal warts and all information for anyone with advanced prostate cancer. I have been a contributer to this site since may this year. Greg is fast approaching the end and is hoping for this site to be continued by others sharing the saame diagnosis. Lee aka popeye Link to comment Share on other sites More sharing options...
JimJimJimJim Posted August 22, 2012 Share Posted August 22, 2012 Lee This is a difficult one for me. On the one hand Greg's site has some wonderful personal stories - warts and all as you say. But, on the other hand our site is dedicated to passing on information for which there is clear evidence. To depart from this is "biting the hand that feeds us" - Our teleconference facility, and other expenses are covered by the Prostate Foundation of Australia (PCFA) using, in part, funds supplied by the Movember organization. Both these organizations clearly state that the funds are to be used on evidence based medicine. More than that, I personally have watched someone die a very poor, lonely death at a young age because of following non-standard treatments. At the same time (18 years ago) I was a couple of beds away getting a cure from the standard medical practice. So, I am worried that if we recommended Greg's site, some of our less sophisticated members may be led away from treatment that may extend life or improve quality of life, thinking that we endorse it. Someone who was prepared to do a lot of work could rework the stories leaving out the potentially harmful bits, but I think Greg would not be happy with this, believing as he does that there is some merit in these bits. Jim Link to comment Share on other sites More sharing options...
Popeye Posted August 23, 2012 Share Posted August 23, 2012 Jim: Thank you for your reply to my post here regarding the web site Greg's Legacy. I see your point and understand how this works on this site regarding factual information being presented to members. I also agree that Greg would not be a happy person if his stuff was altered in any way. Lee aka Popeye Link to comment Share on other sites More sharing options...
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