This Friday 25 November 2016: Agenda: Theranostics and Round Table

[Admin]

 

Agenda Friday 25 November 2016

Please note

 

This is a permanent change. We do not use 4444# any more.

The phone numbers are unchanged.

Theranostics World Conference

Earlier this month, Paul, Alan and Jim made their way to Melbourne for the Theranostics World Conference. The Prostate Cancer Foundation of Australia (PCFA) supports research in theranostics. So PCFA became one of the sponsors of the conference. They passed the resulting extra tickets to us, and met our expenses.

 

One or more of the three will let you know what they learned.

[Definition of theranostics at the bottom of this posting.]

Round table discussion

Members who wish to tell their story, or update their story, or to ask questions will have a chance here.

Join us this Friday morning!

 

Disclaimer

This Community does not give medical advice. No members are authorised to give medical advice. Ask your doctor if you hear anything here that you think may be related to your treatment. 

 

Time 

9:30am - 11:00am Eastern Standard Time (Queensland)

The formal phone-in meeting ends after 90 minutes.

The lines are kept open for up to an hour after that for members to informally chat.

 

Daylight savings times

Brisbane 9:30am

Sydney, Melbourne, Hobart: 10:30am

Adelaide, 10:00am

Perth 7:30am

Winter times

Brisbane 9:30am

Sydney, Melbourne, Hobart 9:30am

Adelaide 9:00am

Perth 7:30am 

Daylight saving ends first Sunday in April

Daylight saving starts first Sunday in October

 

Dial in 

You must dial in - we do NOT dial you.

Landline - Anywhere in Australia - 25 cents

Phone numbers only in email.

Problem? Contact Jim.

 

Mobile phone warning

The costs of mobile calls are nothing to do with the Advanced Prostate Cancer Support Group or with PCFA. They are between you and your phone provider (Optus, Telstra, Virgin, Vodafone, etc).

 

If you dial one of the capital city numbers given above from a mobile phone, the cost to you will be the cost on your mobile phone plan. If your plan gives you free, or low cost local calls, and you are in one of these cities, it should be free, or a local call. If your plan gives you free, or local cost national calls that should work too. 

 

Be sure - call your provider, give the number you might be calling, and check the cost for you to call that number.

 

Speaking time 

We want many voices to be heard. If you are a member listed to speak below, the chair will probably expect you to take no more than about 5 minutes on presentation so there is plenty of time for others to respond.

Special Guest Speakers are invited to speak for 10-15 minutes, then field questions.

 

Guidelines

No noise

House - radio, TV, computer, pets, other phones, conversation

Yourself - mute button, or mouthpiece away from mouth

Phone - call waiting off (#43#), Mute button or hang up to leave the room. No mute button? ##4 to mute, ##5 to unmute. Cordless phone - don't carry, put on folded handkerchief to limit reverberation

Other calls - Please do NOT use call waiting or another line on the same phone to take another call - members around Australia are left listening to your 'hold' music until you return.

Speaker phone

Please do NOT use a speaker phone, unless you are very good at keeping it Mute, and at lifting and using the hand piece when you wish to join in the conversation.

Mobile phone

You will need enough charge for the length of the call, or take the call with your charger plugged in.

Speaking

Speak clearly into mouthpiece in ordinary voice.

Say who you are when signing in, and each time you speak.

Listen for the gavel. The Chair may need to interrupt.

It's a meeting of 20 people, not a simple phone conversation. If you are not one of the two people in the particular conversation at the time, keep your mute button down and let others contribute.

Help the secretary by later emailing details for the minutes.

Restarting

You may hang up and sign in again as many times as necessary.

Sometimes we may have to restart the meeting - dial in again. With everyone calling at once you may need to try more than once.

 

Apologies 

From.

 

Theranostics and Round Table (see top)

 

Formal end 

The Chair will declare the formal part of the teleconference closed at his discretion, perhaps around 11am. The teleconference lines will be kept open until at least 11:30 for anyone who wishes to continue discussions, update his health, or just chat. 

 

Informal chat 

Any topic you like - topics we didn't reach, something discussed earlier you wish to comment on, an update on your health, how your new boat is going, moaning about the weather, anything that you wish to say. 

 

Future phone-in support group meetings 

Fourth Friday of each month, except: 

January (one week late for Australia Day),

March (one week early for Easter), and 

December (one week early for Christmas)

 

Phone-in support group meeting dates 2016

November 25

December 16 (not the fourth Friday)

Phone-in support group meeting dates 2017

January meeting will be one week late:

February 3 (not the fourth Friday)

February 24

March 24 (not the last Friday)

April 28

May 26

June 23 (not the last Friday) 

July 28

August 25

September 22 (not the last Friday)

October 27

November 24

December 15 (one week early, not the fourth Friday)

 

Changes or questions 

If you wish to update us about any changes in your health or treatment, or have a question you would like answered or discussed, or you would like to talk about joining a teleconference group, let us know. Then we can put it high on the agenda so it doesn't get lost - just reply to this email, or use Contact Jim on JimJimJimJim.com.

 

This message has been send to you because you are a member of the Advanced Prostate Cancer Support Group.

 

Visit JimJimJimJim.com and click on Contact Jim if this is a problem.

 

Theranostics

Theranostics is about using radioactive chemicals which will attach to cancer cells. 

• Low level radioactivity is used to show where the cancer cells are. 
• High level radioactivity is used to kill the cancer cells. 

 

Two examples members may be familiar with are:

• PSMA-Gallium-68 scans; and
• PSMA-Lutetium-177 treatment.

Both attach a radioactive load to PSMA, which mostly occurs on prostate cancer cells:

• Gallium-68 has low level radiation, and shows up the  attached prostate cancer cells on PET scans;
• Lutetium-177 has stronger radiation, and kills the attached prostate cancer cells.

 

Quite a number of our members have had PSMA-Gallium-68 scans, and at least three of our members participate in a trial of Lutetium-177.

 

To see what members have said about these, go to our forums:

forums.jimjimjimjim.com

find the search box near the top right of the page, and enter:

• lutetium; or
• PSMA; or
• gallium.