Nev Black Posted December 16, 2015 Share Posted December 16, 2015 A special call to men using Zytiga (Abiraterone), Xtandi (Enzalutamide) or Xofigo (radium 223) to join us on the Telephone Meeting this Friday 18 December 2015. Please share your experience, good or bad, of these newer drugs, with us all. Disclaimer This Community does not give medical advice. No members are authorized to give medical advice. Ask your doctor if you hear anything here that you think may be related to your treatment. Time 9:30am - 11:00am Eastern Standard Time (Queensland) The formal phone-in meeting ends after 90 minutes. The lines are kept open for up to an hour after that for members to informally chat. Daylight savings times Brisbane 9:30am Sydney, Melbourne, Hobart: 10:30am Adelaide, 10:00am Perth 7:30am Winter times Brisbane 9:30am Sydney, Melbourne, Hobart 9:30am Adelaide 9:00am Perth 7:30am Daylight saving ends first Sunday in April Daylight saving starts first Sunday in October Dial in You must dial in - we do NOT dial you. Landline - Anywhere in Australia - 25 cents Phone numbers only in email Contact Jim if this is a problem. Mobile phone warning The costs of mobile calls are nothing to do with the Advanced Prostate Cancer Support Groups or with PCFA. They are between you and your phone provider (Optus, Telstra, Virgin, Vodafone, etc). If you dial one of the capital city numbers given above from a mobile phone, the cost to you will be the cost on your mobile phone plan. If your plan gives you free, or low cost local calls, and you are in one of these cities, it should be free, or a local call. If your plan gives you free, or local cost national calls that should work too. Be sure - call your provider, give the number you might be calling, and check the cost for you to call that number. Speaking time We want many voices to be heard. If you are a member listed to speak below, the chair will probably expect you to take no more than about 5 to 10 minutes on presentation so there is plenty of time for others to respond. Guidelines No noise House - radio, TV, computer, pets, other phones, conversation Yourself - mute button, or mouthpiece away from mouth Phone - call waiting off (#43#), Mute button or hang up to leave the room. No mute button? ##4 to mute, ##5 to unmute. Cordless phone - don't carry, put on folded handkerchief to limit reverberation Other calls - Please do NOT use call waiting or another line on the same phone to take another call - members around Australia are left listening to your 'hold' music until you return. Speaker phone Please do NOT use a speaker phone, unless you are very good at keeping it Mute, and at lifting and using the hand piece when you wish to join in the conversation. Mobile phone You will need enough charge for the length of the call, or take the call with your charger plugged in. Speaking Speak clearly into mouthpiece in ordinary voice. Say who you are when signing in, and each time you speak. Listen for the gavel. The Chair may need to interrupt. It's a meeting of 20 people, not a simple phone conversation. If you are not one of the two people in the particular conversation at the time, keep your mute button down and let others contribute. Help the secretary by later emailing details for the minutes. Restarting You may hang up and sign in again as many times as necessary. Sometimes we may have to restart the meeting - dial in again. With everyone calling at once you may need to try more than once. Apologies Late starters Maybe you haven't had access to the agenda or you have late breaking news you would like to share. Tell the chairman here at the beginning of the meeting that you would like to speak, and he will fit you in - probably later, perhaps right now if that suits. Round table Unfortunately our guest speaker for this month is again unavailable, so we are having another round table chat this Friday morning. As more men are now using Zytiga (Abiraterone), Xtandi (Enzalutamide) and Xofigo (radium 223) we are asking you to share your experience with us. A round table is a short update from most of the members that sign on. The idea is that the questions that come up will bring up lots of suggestions of things we can ask our doctors about. Formal end The Chair will declare the formal part of the teleconference closed at his discretion, perhaps around 11am. The teleconference lines will be kept open until at least 11:30 for anyone who wishes to continue discussions, update his health, or just chat. Informal chat Any topic you like - topics we didn't reach, something discussed earlier you wish to comment on, an update on your health, how your new boat is going, moaning about the weather, anything that you wish to say. Future phone-in support group meetings Phone-in meetings are held on the fourth Friday (NOT always the last Friday) of each month (except January (one week late) and December (one week early). Phone-in support group meeting dates 2015 December 18 (not the fourth Friday) Phone-in support group meeting dates 2016 January 29 (not the fourth Friday) February 26 March 18 (not the fourth Friday) April 22 (not the last Friday) May 27 June 24 July 22 (not the last Friday) August 26 September 23 (not the last Friday) October 28 November 25 December 16 (not the fourth Friday) Changes or questions If you wish to update us about any changes in your health or treatment, or have a question you would like answered or discussed, or you would like to talk about joining a teleconference group, let us know. Then we can put it high on the agenda so it doesn't get lost - just reply to this email, or use Contact Jim on JimJimJimJim.com. This message has been send to you because you are a member of an Advanced Prostate Cancer Support Group. Visit JimJimJimJim.com and click on Contact Jim if this is a problem. Link to comment Share on other sites More sharing options...
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