Admin Posted June 24, 2015 Share Posted June 24, 2015 Agenda Friday 26 June 2015 Disclaimer This Community does not give medical advice. No members are authorized to give medical advice. Ask your doctor if you hear anything here that you think may be related to your treatment. Time 9:30am - 11:00am Eastern Standard Time (Queensland) The formal phone-in meeting ends after 90 minutes. The lines are kept open for up to an hour after that for members to informally chat. Daylight savings times Brisbane 9:30am Sydney, Melbourne, Hobart: 10:30am Adelaide, 10:00am Perth 7:30am Winter times Brisbane 9:30am Sydney, Melbourne, Hobart 9:30am Adelaide 9:00am Perth 7:30am Daylight saving ends first Sunday in April Daylight saving starts first Sunday in October Dial in You must dial in - we do NOT dial you. Landline - Anywhere in Australia - 25 cents Phone numbers only in email. If this is a problem contact Jim. Mobile phone warning The costs of mobile calls are nothing to do with the Advanced Prostate Cancer Support Groups or with PCFA. They are between you and your phone provider (Optus, Telstra, Virgin, Vodafone, etc). If you dial one of the capital city numbers given above from a mobile phone, the cost to you will be the cost on your mobile phone plan. If your plan gives you free, or low cost local calls, and you are in one of these cities, it should be free, or a local call. If your plan gives you free, or local cost national calls that should work too. Be sure - call your provider, give the number you might be calling, and check the cost for you to call that number. Speaking time We want many voices to be heard. If you are a member listed to speak below, the chair will probably expect you to take no more than about 5 minutes on presentation so there is plenty of time for others to respond. Special Guest Speakers are invited to speak for 10-15 minutes, then field questions. Guidelines No noise House - radio, TV, computer, pets, other phones, conversation Yourself - mute button, or mouthpiece away from mouth Phone - call waiting off (#43#), Mute button or hang up to leave the room. No mute button? ##4 to mute, ##5 to unmute. Cordless phone - don't carry, put on folded handkerchief to limit reverberation Other calls - Please do NOT use call waiting or another line on the same phone to take another call - members around Australia are left listening to your 'hold' music until you return. Speaker phone Please do NOT use a speaker phone, unless you are very good at keeping it Mute, and at lifting and using the hand piece when you wish to join in the conversation. Mobile phone You will need enough charge for the length of the call, or take the call with your charger plugged in. Speaking Speak clearly into mouthpiece in ordinary voice. Say who you are when signing in, and each time you speak. Listen for the gavel. The Chair may need to interrupt. It's a meeting of 20 people, not a simple phone conversation. If you are not one of the two people in the particular conversation at the time, keep your mute button down and let others contribute. Help the secretary by later emailing details for the minutes. Restarting You may hang up and sign in again as many times as necessary. Sometimes we may have to restart the meeting - dial in again. With everyone calling at once you may need to try more than once. Apologies From ... Late starters Maybe you haven't had access to the agenda or you have late breaking news you would like to share. Tell the chairman here at the beginning of the meeting that you would like to speak, and he will fit you in - probably later, perhaps right now if that suits. A bleak start At age 50 Barry (who lives in the Adelaide Hills) was diagnosed with locally advanced prostate cancer, with the cancer growing out of his prostate into his seminal vesicles. His PSA has been as high as 50, and his urologist pronounced it inoperable. Barry will tell us his story - and some of the details may surprise you and educate you. Special expert guest speaker - Dr Addie Wootten Our Advanced Prostate Cancer Support Group, and our website JimJimJimJim.com, have grown like Topsy, as men try to support each other. At the other end of the support spectrum is Prostmate and My Road Ahead, carefully crafted by professionals, based on careful research by Dr Addie Wootten and her colleagues, which aims to provide: a confidential online portal with online telehealth consultations, tools to track progress, treatments and appointments, and self-help modules to enhance health and wellbeing. We first met Dr Addie back in 2012 when she interviewed members about what was needed. We have since been told about successes members have had with the site, including great praise for the Skype consultations with psychologists. Addie will give us an overview of the online programs: - PROSTMATE and - My Road Ahead - where these programs are going, the feedback received and the research data collected. the key health and wellbeing areas being focussed. what's on offer and how to make best use of it. Other new stories or updates Any man who wishes to update us on his progress is welcome to contribute here. Formal end The Chair will declare the formal part of the teleconference closed at his discretion, perhaps around 11am. The teleconference lines will be kept open until at least 11:30 for anyone who wishes to continue discussions, update his health, or just chat. Informal chat Any topic you like - topics we didn't reach, something discussed earlier you wish to comment on, an update on your health, how your new boat is going, moaning about the weather, anything that you wish to say. Future phone-in support group meetings Phone-in meetings are held on the fourth Friday (NOT always the last Friday) of each month (except January (one week late) and December (one week early)). Phone-in support group meeting dates 2015 June 26 July 24 (not the last Friday) August 28 September 25 October 23 (not the last Friday) November 27 December 18 (not the fourth Friday) Changes or questions If you wish to update us about any changes in your health or treatment, or have a question you would like answered or discussed, or you would like to talk about joining a teleconference group, let us know. Then we can put it high on the agenda so it doesn't get lost - just reply to this email, or use Contact Jim on JimJimJimJim.com. This message has been send to you because you are a member of an Advanced Prostate Cancer Support Group. Visit JimJimJimJim.com and click on Contact Jim if this is a problem. Link to comment Share on other sites More sharing options...
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