Agenda: Tomorrow Friday 19 December: Mark Moyad: World expert on supplements and alternative medicine.

[Admin]

Thanks to Nev for providing an interim agenda while I was at the beach.

The only thing different in this agenda is the talk by Ian (see below).

 

Agenda Friday 19 December 2014

(Thursday 18 December in Michigan)

 

Disclaimer

This Community does not give medical advice. No members are authorised to give medical advice. Ask your doctor if you hear anything here that you think may be related to your treatment.

 

Time 

9:30am - 11:00am Eastern Standard Time (Queensland)

The formal phone-in meeting ends after 90 minutes.

The lines are kept open for up to an hour after that for members to informally chat.

 

Daylight savings times

Brisbane 9:30am

Sydney, Melbourne, Hobart: 10:30am

Adelaide, 10:00am

Perth 7:30am

Michigan 6:30pm the day before

Winter times

Brisbane 9:30am

Sydney, Melbourne, Hobart 9:30am

Adelaide 9:00am

Perth 7:30am 

 

Dial in 

You must dial in - we do NOT dial you.

Landline - Anywhere in Australia - 25 cents

Phone numbers only available in email.

If this is a problem, please call Jim.

 

Mobile phone warning

The costs of mobile calls are nothing to do with the Advanced Prostate Cancer Support Groups or with PCFA. They are between you and your phone provider (Optus, Telstra, Virgin, Vodafone, etc).

 

If you dial one of the capital city numbers given above from a mobile phone, the cost to you will be the cost on your mobile phone plan. If your plan gives you free, or low cost local calls, and you are in one of these cities, it should be free, or a local call. If your plan gives you free, or local cost national calls that should work too. 

 

Be sure - call your provider, give the number you might be calling, and check the cost for you to call that number.

 

Speaking time 

We want many voices to be heard. If you are a member listed to speak below, the chair will probably expect you to take no more than about 5 minutes on presentation so there is plenty of time for others to respond.

Special Guest Speakers are invited to speak for 10-15 minutes, then field questions.

 

Guidelines

No noise

House - radio, TV, computer, pets, other phones, conversation

Yourself - mute button, or mouthpiece away from mouth

Phone - call waiting off (#43#), Mute button or hang up to leave the room. No mute button? ##4 to mute, ##5 to unmute. Cordless phone - don't carry, put on folded handkerchief to limit reverberation

Other calls - Please do NOT use call waiting or another line on the same phone to take another call - members around Australia are left listening to your 'hold' music until you return.

Speaker phone

Please do NOT use a speaker phone, unless you are very good at keeping it Mute, and at lifting and using the hand piece when you wish to join in the conversation.

Mobile phone

You will need enough charge for the length of the call, or take the call with your charger plugged in.

Speaking

Speak clearly into mouthpiece in ordinary voice.

Say who you are when signing in, and each time you speak.

Listen for the gavel. The Chair may need to interrupt.

Help the secretary by later emailing details for the minutes.

Restarting

You may hang up and sign in again as many times as necessary.

Sometimes we may have to restart the meeting - dial in again. With everyone calling at once you may need to try more than once.

 

Apologies 

Quite a few, given the holidays are upon us.

 

Late starters 

Maybe you haven't had access to the agenda or you have late breaking news you would like to share. Tell the chairman here at the beginning of the meeting that you would like to speak, and he will fit you in probably later, perhaps right now if that suits. 

 

Ian's remarkable innings with Jevtana (Cabazitaxel) 

We deal with prostate cancer by hitting with treatment after treatment, hoping to delay it long enough for us to die of old age. Ian from Perth has been doing that for 12 years, since he was diagnosed at age 54 with a PSA of 52. Ian will tell us his story - remarkable for his response to Jevtana, and for the levels he keeps his PSA stable at.

 

 

Special expert guest speaker Dr Mark Moyad

Beside probably knowing more about supplements and alternative medicine than anyone else on earth, Dr Mark Moyad has for some years concentrated on helping men with prostate cancer. You will have seen his monthly articles in US Too Hotsheets, or come across his books, or seen videos of him at the PCRI annual Prostate Cancer Conferences. He hosted the 2014 Conference.

 

Mark will join us from his home in Michigan. He will start with a short talk, then take questions.

 

If the members taking part in the teleconference run out of questions, we will take a few from members who cannot make it. Simply reply to this email with your question.

 

Other new stories or updates 

Any man who wishes to update us on his progress is welcome to contribute here.

 

Formal end 

The Chair will declare the formal part of the teleconference closed at his discretion, perhaps around 11am. The teleconference lines will be kept open until at least 11:30 for anyone who wishes to continue discussions, update his health, or just chat. 

 

Informal chat 

Any topic you like - topics we didn't reach, something discussed earlier you wish to comment on, an update on your health, how your new boat is going, moaning about the weather, anything that you wish to say. 

 

Future phone-in support group meetings 

Phone-in meetings are held on the fourth Friday (NOT always the last Friday) of each month (except January (one week late) and December (one week early)). In 2014 there will be no phone-in meeting in April because the last two Fridays are public holidays.

 

Phone-in support group meeting dates 2014

December 19 (not the 4th Friday)

Phone-in support group meeting dates 2015

January 30 (not the fourth Friday)

February 27

March 27

April 24

May 22 (not the last Friday)

June 26

July 24 (not the last Friday)

August 28

September 25

October 23 (not the last Friday)

November 27

December 18 (not the fourth Friday)

 

Changes or questions 

If you wish to update us about any changes in your health or treatment, or have a question you would like answered or discussed, or you would like to talk about joining a teleconference group, let us know. Then we can put it high on the agenda so it doesn't get lost - just reply to this email, or use Contact Jim on JimJimJimJim.com.

 

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