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  1. Popeye

    An Update from Lee aka Popeye

    This is for members who may be interested in my little adventures with this disease. Since my salvage prostatectomy, cystectomy, appendectomy back in November 2014 my PSA remained undetectable until 2016 and then started rising. Over the past 18 months the PSA was doubling approx every four months. In March 2017 when my PSA was 0.26 I had a PSMA gallium 68 scan that was negative so I was back to just hanging about. My PSA recently hit 1.8 and I have just returned from Townsville after another PSMA scan that returned positive results. The news was good and bad news. Bad news because there were
  2. I have a question for the experts - my husband has had his first blood test after initial hormone therapy of one month of Firmagon (in April) and then a six month injection of Lucrin. From what was an original PSA reading of 100 in March, his level has just been tested and come back at 77. We have no idea what to expect, but thought it would be lower. The GP said that it would have peaked at about 166 prior to treatment beginning in April, so I'm guessing that the current reading of 77 isn't too bad. I'm wondering also what is the significance of the alk phos levels. He is to begin 6
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