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  1. I noticed a few minutes ago that the JimJimJimJim YouTube Channel has clicked up 50,000 views. That's a lot of help and comfort that men and their partners have found in understanding advanced prostate cancer - their disease, their treatments, and the journey of others. The top topic - Gleason score in advanced prostate cancer Click the picture to view the video. Closed captions Cc for the hard of hearing. The top story - David's story - 7 years with metastatic prostate cancer Click the picture to view the video. Closed captions Cc for the
  2. No-one told me about metastatic spinal cord compression. I want to warn men with advanced prostate cancer about the risk of metastatic spinal cord compression so that you don't end up like me. What is metastatic spinal cord compression? This happens when cancer cells grow in or near to your spine and press on your spinal cord. It's not common, but it is important that you’re aware of the risk, what symptoms to look out for and how to get help. What is my risk of developing metastatic spinal cord compression? Y
  3. Since the start of this century there are been a number of proposals to establish a Proton Beam Therapy Centre in Australia. The New South Wales Government has done a number of feasibility studies for a Proton Beam Therapy Centre in Eastern Sydney. The South Australian Government put forward a proposal for a Centre in South Australia. In 2014 an alliance between a commercial company, Proton Therapy Australia and Mater Health Services, Brisbane announced the building of Australia’s first proton therapy facility. On 8 August 2016 the Victorian Government announced the establishm
  4. Nanoparticles are microscopic particles that measure less than 100 nanometres. A nanometre is one thousand-millionth of a metre ( 0.000000001 m). Scientists have developed nanoparticles that can target cancer cells. When cancer cells take up ordinary nanoparticles, they often enclose them in small compartments called endosomes. This prevents the drug molecules from reaching their target. Researchers from Ohio State University in America have developed a "nanobomb" which can explode the endosome compartments and release the drug molecules. Click here to read a news repor
  5. With increasing options to treat advanced prostate cancer, there is no clear agreement on the order in which these treatments should be given. I attach a chart prepared (following the STAMPEDE clinical trial which recommended early ADT and chemotherapy for certain patients) by an American oncologist setting out his view of what is currently best clinical practice in America. In Australia our options are more restricted: Abiraterone and Enzalutamide are only available on the Pharmaceutical Benefits Scheme after chemotherapy and Provenge is not available on the Pharmaceutical Benefi
  6. Men with PSAs over 100 face psycho-social and treatment issues that may be different than most of us with Advanced Prostate Cancer. MaleCare, a US Prostate Cancer Support organisation, has started an online group called PSA Over 100. It may be of interest to those of our members who have very high PSAs. You can join by sending an email with the word subscribe in the subject and body to: psaover100-subscribe@yahoogroups.com I met a man at the recent Prostate Cancer Research Institute Conference in Los Angeles whose PSA had peaked at 2276. Currently it's 556 having gone up
  7. Click on this link for useful information about how advanced cancer evolves and the effects that this has on treatment
  8. Paul Edwards

    ADT affects the brain

    Cognitive impairment can occur in cancer patients who are treated with a variety of therapies, including radiation therapy, hormone therapy, and chemotherapy. After chemotherapy treatment it is commonly called "chemo brain." Signs of cognitive impairment include forgetfulness, inability to concentrate, problems recalling information, trouble multi-tasking and becoming slower at processing information. The number of people who experience cognitive problems following cancer therapy is broad, with an estimated range of 15 to 70 percent. There have been several studies analyzing this side e
  9. Research reported in Medical News Today found that: Patients who supplement conventional medical care with therapies such as acupuncture, yoga, chiropractic, biofeedback, nutrition, massage, and mindfulness have better outcomes in the treatment of chronic pain, depression, and stress. Patients who used these therapies became better at managing their own health and care, and more willing to do this. Click here to read the report.
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