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  1. As mentioned in another thread I started Lucrin Depot quarterly injections in March 2017. I had my most recent one last Monday. Previous thread I've had hot flushes the whole time since 2017 except for a few months when I was taking Androcur (stopped taking it in April this year). I've noticed over the last few months that the flushes have become noticeably longer-lasting and 'wetter' but, perhaps, not as frequent (still have at least 6 or so every 24 hour more often in bed). Also on occasion a flush was definitely brought on by an anxious or stressful thought. For example, about 2am this morning in bed, I was thinking about some gardening my wife and I had done the previous afternoon. There's a slight slope in the garden and I had a sudden picture of my wife falling down. This instantly started a vigorous flush. The flushes are not always associated with anxiety but I was just wondering if a discussion of a correlation between flushes, ADT and anxiety has ever come up?
  2. Tommy

    HIV and Prostate Cancer

    Hello everybody. I'm new to this forum. Thank you for allowing me to be part of it. I've been HIV positive for 26 years and recently diagnosed with prostrate cancer Stage pT3bN1 with a Gleason 4+5 after rising PSA 5.8. I am 60. I underwent a Laparoscopic Radical Prostatectomy + nodes (Robotic). Post operative PSA 1.4. Unfortunately microscopic cancer cells still remain. Now considering treatment. Last two PSA 1.5 stable. Underwent whole body bone scan. No evidence to suggest metastatic bone disease. Further CT scan of chest, abdomen and pelvis suggests no evidence of malignancy. Good. My problem is to decide on treatment. As I already have a weakened immune system I want to protect it as much as possible. Oncologists don't seem to understand the relationship between HIV and cancer. Not much is known about it. I have been recommended to start ADT. Lucrin (injection once a month) with Cosudex (one tablet daily). After some research, I want to try Enzalutimide together with SABR Radiotherapy and possibly Medical Cannabis. I would be interested in your opinion with this option. My biggest concern with regard to treating this cancer is the differing information I am barraged with. It's very difficult to make an informed decision. Let's do this, add this, see what happens, that hasn't been scientifically proven, you don't qualify for a trial, natural therapies don't work. I need a Medical Oncologist that is prepared to think outside the box, open to suggestions and provides options whether traditional or unconventional. Living in a small coastal village in Northern NSW makes it hard to find a good Oncologist without travelling great distances. Thank you for reading.
  3. I have a question for the experts - my husband has had his first blood test after initial hormone therapy of one month of Firmagon (in April) and then a six month injection of Lucrin. From what was an original PSA reading of 100 in March, his level has just been tested and come back at 77. We have no idea what to expect, but thought it would be lower. The GP said that it would have peaked at about 166 prior to treatment beginning in April, so I'm guessing that the current reading of 77 isn't too bad. I'm wondering also what is the significance of the alk phos levels. He is to begin 6 x Doxetacel in a couple of weeks.
  4. A question for the experts - has anyone seen any information on the relative effectiveness of Lucrin verses Zolodex ?? I have been on intermittent Lucrin injections for 15 years, and its effectiveness seemed to be reducing recently, so we changed to Zolodex plus added Cosudex. I really dislike the Zolodex injections so we have changed back to Lucrin, but I do not want to compromise my treatment and will put up with the Zolodex if it is more effective. Any comments ?? [Moderator - This post has been moved. If you've got a new question, start a new discussion, rather than interrupting an existing discussion.]
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