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  1. The Prostate Cancer Foundation of Australia has posted a video about support groups for gay and bisexual men with prostate cancer. Our group is happy to provide information about advanced prostate cancer issues to gay and bisexual men with prostate cancer. For issues such as partnership and sexual issues, there are the following special purpose support groups: Shine a Light Support Group for Gay & Bisexual Men (NSW) NT Rainbow PCSG (NT) Gay & Bisexual Men's Prostate and Other Cancer Support Group (QLD) Gay Prostate Support Adelaide (SA) Melbourne - Gay Men's PCSG (VIC) Perth Gay / Bisexual PCSG (WA)
  2. Here's a recent video published by the Prostate Cancer Foundation of Australia about the benefits of exercise.
  3. If you didn't watch it on the night, the video is now available of the Ask The Experts webcast "Prostate Cancer: Diet, Supplements and Lifestyle" which was held on 15 June 2016. Click on this link to watch the video. Before you can watch the video, you will be asked to sign up as a member of the Prostate Cancer Foundation of Australia (PCFA)'s Online Community.
  4. On Wednesday 15 June 2016 from 7pm - 8pm (AEST) the Prostate Cancer Foundation of Australia will be holding an Ask The Experts webcast "Prostate Cancer: Diet, Supplements and Lifestyle". The experts will be: Prof. Mark Moyad Professor of Preventative & Alternative Medicine, University of Michigan Prof Phillip Stricker Urologist St Vincent's Sydney Dr Erica James Associate Professor (Public Medicine) University of Newcastle Jaimie Fronsek Accredited Dietitian & Nutritionist (more information about the experts is available on the registration page) What's a Webcast? A webcast is a video broadcast of an event over the internet. This event will be a Question & Answer panel discussion by a group of experts that you can watch at home on your computer. How do I watch the webcast? If you want to watch the webcast, the first thing you need to do is to register for the webcast. The way that you register is by clicking this link and filling in the form. Once you have registered, you will be emailed details with instructions about how to watch the webcast on the night. What if I can't watch the webcast on Wednesday 15 June 2016? You can still register and you will be sent a link to the recorded webinar to watch later. How do I ask questions? When you register, you can send in questions that you would like the experts to answer. You can also send in questions on the night from your computer whilst you are watching the panel discussion.
  5. The Prostate Cancer Foundation of Australia has posted a video on YouTube of the following talk on Advances in Prostate Cancer (Ga68 PSMA PET/CT Scans) given by urologist A/Prof Henry Woo at Sydney Adventist Hospital on 28 September 2015.
  6. The Prostate Cancer Foundation of Australia has posted a video on YouTube of the following talk on Radiation Therapy for Prostate Cancer given by radiation oncologist A/Prof Michael Izard at Sydney Adventist Hospital on 22 June 2015 .
  7. The Prostate Cancer Foundation of Australia has posted a video on YouTube of the following talk on Metastatic Prostate Cancer given by medical oncologist A/Prof Gavin Marx at Sydney Adventist Hospital on 25 May 2015.
  8. Paul Edwards

    PCFA video on YouTube

    The Prostate Cancer Foundation of Australia has recently posted the following video on YouTube: Acupuncture in Oncology Click on the link to view the video. PCFA has other videos on YouTube - not all of them are relevant to men with advanced prostate cancer.
  9. In June 2014 the Prostate Cancer Foundation of Australia (PCFA) released a new Advanced Prostate Cancer Pack. The Pack has already been sent to existing members. New members who join the Group will receive a copy of the Pack by post. A copy of the Pack is available online by clicking this link. Two members of our Group (Jim Marshall and Tony Maxwell) were members of the Expert Advisory Panel which helped to develop the Pack. The Pack is a useful starting point for someone who is newly diagnosed with advanced prostate cancer. However the Pack is not a comprehensive guide to the advanced prostate cancer journey because there are some areas where it is incomplete. Some examples of where the Pack is incomplete include: Recent developments in drugs and new treatments In recent years there have been enormous changes in the drugs available for treatment of advanced prostate cancer. The Pack does not mention important new drugs such as Abiraterone (brand name Zytiga), Enzalutamide (brand name Xtandi) or Radium 223 (brand name Xofigo). Presently the treatment of advanced prostate cancer is a state of flux as to: what drugs should be used to treat advanced prostate cancer? whether drugs should be used singly or in combination? in what sequence should the various drugs be administered? For example, there has been a recent suggestion that Chemotherapy plus Hormone Therapy should be used to treat newly diagnosed men with metastatic prostate cancer. Choosing a Doctor The Pack omits the following advice previously contained in earlier publications about choosing a doctor: “Choosing a doctor you feel comfortable with and can talk to is important. You need to feel that the specialist is acting in your best interest, and can give you the help and answers you need. There is also good evidence that seeing a doctor with a special interest and extensive experience in prostate cancer will result in improved outcomes. Consumer organisations recommend that you ask what experience a specialist has in the recommended treatment. Other things may also affect your choice. Some people are able and happy to travel a long way for specialist care. Others either cannot travel or prefer to remain at home, close to family and friends. Some people prefer specialists who deal with them as equals, discussing all options with them and assisting them to make the final decision, while others like their doctors to take the lead and make decisions for them. Studies have shown that specialists are more likely to recommend treatments that they understand and practise. It is possible that you will get different recommendations from different specialists. Speaking to both urologists and radiation oncologists can be helpful.” Treatment Record The Pack omits the following advice previously contained in earlier publications about keeping a treatment record: “You may find it useful to record key information about your diagnosis and treatment. This can help a doctor track your progress if all your medical records are not available and it may also help you keep track of changes in your care. In its simplest form, your treatment record is just a diary comprising a date, what happened, symptoms, test results and reminders to yourself about what you need to do.”
  10. It is distressing to receive a diagnosis of prostate cancer but even more so if you are in your 40s or early 50s when diagnosed. A Younger Prostate Cancer Support Group for Victorian men has been established with the first meeting commencing 29 July 2014. Around 730 Victorian men under the age of 60 years are diagnosed with prostate cancer each year, with some feeling disconnected at times from older support group members due to the variations in experiences and life stages. A collaborative working group, including younger men diagnosed with PCa, a continence nurse, Cancer Council Victoria and Andrology Australia, have come together to develop a specialist group to meet this identified need. This new support group is being established for younger people impacted by prostate cancer to connect and access information. TIME: Last Tuesday of the Month (commencing 29 July 2014) 8:30am to 9:30am WHERE: Princes (Visy) Park – Royal Parade, Carlton, Mike Fitzpatrick Room WHAT: Robert Flower (Melbourne Football great) presenting on “Challenges of Prostate Cancer for a young man – personal experience” WHO: For men who have been diagnosed with prostate cancer at a younger stage of life, their partners, carers, family and friends. CONTACT: Sam Gebert 03 9444 0039 or sgeb@live.com.au Some men who are diagnosed with prostate cancer at a younger age will have advanced cancer when diagnosed. One of our Victorian members has been involved in establishing this new Support Group. We look forward to working with this new Group to assist any younger men who have advanced prostate cancer.
  11. Jim Marshall (not a doctor) said ... I would rather members did not contact the PCFA for a copy of the kit, because the PCFA forwarded the first 150 copies to me to distribute to members. You will receive the kit in the post in the next few days. If you wish it more urgently, reply to this email and I will Express Post it to you. ... end Jim
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