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  1. Three times a year the Prostate Cancer Foundation of Australia (PCFA) publishes Prostate News. Click this sentence to see all issues of Prostate News. Some interesting things to see in the current (August 2016) issue: Pathfinder is the national online register of men and women interested in participating in prostate cancer research. Current research projects listed on Pathfinder include: A randomised controlled trial of iCanADAPT, an internet Cognitive Behavioural Therapy program for the treatment of depression and anxiety in early-stage cancer patients and cancer survivors (NSW) The Men and Sexual Health-Prostate Cancer (MaSH-PC) study (Qld) Do Australian men with prostate cancer have access to well-designed websites with quality content information to encourage physical exercise?(SA)Rekindle: testing an online resource to promote sexual wellbeing for both patients and their partners (NSW) Click this sentence to go to Pathfinder to register yourself for clinical trials. Also in this issue, PCFA's scientific writer, Wendy Winnall, reports Dr Melissa Hyde's study of Australian men's unmet needs in prostate cancer, and how they access information (78% doctor's resources, 53% internet, 8% support group, 4.5% cancer helplines, and 2.1% counselling services). PCFA CEO, Anthony Lowe, has an article on what patient expectations are for their treatment. Finally, a great looking pair of Steel Blue boots (non-safety) for $99 (with $10 going to PCFA). Click this sentence to all issues of Prostate News.
  2. Joel Nowak of Malecare reports on an abstract presented at the 2016 American Society of Clinical Oncology (ASCO) Scientific Meeting about how abiraterone (brand name Zytiga) and enzalutamide (brand name Xtandi) may cause cognitive impairment and mood changes. Interestingly the research showed that these side effects were more prevalent with enzalutamide than with abiraterone. Click on this link to read the Malecare report..
  3. Paul Edwards

    Exercise has many benefits

    In today's teleconference the role of exercise in reducing depression was discussed. Researchers are finding that there are many different ways in which exercise affects our bodies. Tony Maxwell, one of our Committee Members is working on a Movember initiative, TrueNTH. TrueNTH has an excellent resource on its website about exercise for men with prostate cancer. Click on this link to read this information. There are a number of pages on the website about exercise. They're well worth a read!
  4. Agenda Friday 22 April 2016 Dealing with depression Graeme Holdsworth (BeyondBlue) Prostate Cancer and its treatments can lead to depression. Hormone therapy (ADT) particularly can bring on depression. When Dinh and colleagues looked at men with prostate cancer who had not had depression in the year before diagnosis, they found that in the first three years after diagnosis: About 3% of the men not on ADT received treatment for depression. About 7% of the men on ADT received treatment for depression. So not everyone gets significant depression on hormone therapy. But it's worth your doctor keeping it in mind and treating if necessary. Graeme's talk is not about these kinds of stats. Graeme has had direct experience of depression, and will tell it as it was for him, and then take questions. Disclaimer This Community does not give medical advice. No members are authorised to give medical advice. Ask your doctor if you hear anything here that you think may be related to your treatment. Time 9:30am - 11:00am Eastern Standard Time (Queensland) The formal phone-in meeting ends after 90 minutes. The lines are kept open for up to an hour after that for members to informally chat. Daylight savings times Brisbane 9:30am Sydney, Melbourne, Hobart: 10:30am Adelaide, 10:00am Perth 7:30am Winter times Brisbane 9:30am Sydney, Melbourne, Hobart 9:30am Adelaide 9:00am Perth 7:30am Daylight saving ends first Sunday in April Daylight saving starts first Sunday in October Dial in You must dial in - we do NOT dial you. Landline - Anywhere in Australia - 25 cents Phone numbers in member email only. Mobile phone warning The costs of mobile calls are nothing to do with the Advanced Prostate Cancer Support Group or with PCFA. They are between you and your phone provider (Optus, Telstra, Virgin, Vodafone, etc). If you dial one of the capital city numbers given above from a mobile phone, the cost to you will be the cost on your mobile phone plan. If your plan gives you free, or low cost local calls, and you are in one of these cities, it should be free, or a local call. If your plan gives you free, or local cost national calls that should work too. Be sure - call your provider, give the number you might be calling, and check the cost for you to call that number. Speaking time We want many voices to be heard. If you are a member listed to speak below, the chair will probably expect you to take no more than about 5 minutes on presentation so there is plenty of time for others to respond. Special Guest Speakers are invited to speak for 10-15 minutes, then field questions. Guidelines No noise House - radio, TV, computer, pets, other phones, conversation Yourself - mute button, or mouthpiece away from mouth Phone - call waiting off (#43#), Mute button or hang up to leave the room. No mute button? ##4 to mute, ##5 to unmute. Cordless phone - don't carry, put on folded handkerchief to limit reverberation Other calls - Please do NOT use call waiting or another line on the same phone to take another call - members around Australia are left listening to your 'hold' music until you return. Speaker phone Please do NOT use a speaker phone, unless you are very good at keeping it Mute, and at lifting and using the hand piece when you wish to join in the conversation. Mobile phone You will need enough charge for the length of the call, or take the call with your charger plugged in. Speaking Speak clearly into mouthpiece in ordinary voice. Say who you are when signing in, and each time you speak. Listen for the gavel. The Chair may need to interrupt. It's a meeting of 20 people, not a simple phone conversation. If you are not one of the two people in the particular conversation at the time, keep your mute button down and let others contribute. Help the secretary by later emailing details for the minutes. Restarting You may hang up and sign in again as many times as necessary. Sometimes we may have to restart the meeting - dial in again. With everyone calling at once you may need to try more than once. Apologies Nev Black was last heard of in Cairns as he wandered the north of the country occasionally catching up with members on the way. (If you are open to catching up with other members, see http://forums.jimjimjimjim.com/index.php?/topic/792-do-drop-in-members-who-would-like-to-meet-and-chat-to-other-members-travelling-through/ OR http://tinyurl.com/kcvhq82) Late starters Maybe you haven't had access to the agenda or you have late breaking news you would like to share. Tell the chairman here at the beginning of the meeting that you would like to speak, and he will fit you in - probably later, perhaps right now if that suits. Volunteer or two If you haven't yet told your story, or have big news, let us hear it here. Special expert guest speaker Graeme Holdsworth: Dealing with depression (see top of this email). Other new stories or updates Any man who wishes to update us on his progress is welcome to contribute here. Formal end The Chair will declare the formal part of the teleconference closed at his discretion, perhaps around 11am. The teleconference lines will be kept open until at least 11:30 for anyone who wishes to continue discussions, update his health, or just chat. Informal chat Any topic you like - topics we didn't reach, something discussed earlier you wish to comment on, an update on your health, how your new boat is going, moaning about the weather, anything that you wish to say. Future phone-in support group meetings Fourth Friday of each month, except: January (one week late for Australia Day), March (one week early for Easter), and December (one week early for Christmas) Phone-in support group meeting dates 2016 April 22 (not the last Friday) May 27 June 24 July 22 (not the last Friday) August 26 September 23 (not the last Friday) October 28 November 25 December 16 (not the fourth Friday) Changes or questions If you wish to update us about any changes in your health or treatment, or have a question you would like answered or discussed, or you would like to talk about joining a teleconference group, let us know. Then we can put it high on the agenda so it doesn't get lost - just reply to this email, or use Contact Jim on JimJimJimJim.com. This message has been send to you because you are a member of an Advanced Prostate Cancer Support Group. Visit JimJimJimJim.com and click on Contact Jim if this is a problem.
  5. Depression resulting from Androgen Deprivation Therapy is a completely under-recognized phenomenon, according to a recent article. Click on this link to read the article. Beyond Blue 1300 22 4636 and Lifeline 13 11 14 provide support for depression.
  6. ADT carries with it a heightened risk of depression as well as cognitive effects. The cognitive impact, though, is neither well defined nor consistent. The data collectively suggest that the negative impact of ADT on patients directly (and on their intimate partners indirectly) are greater for younger than older men. Across the array of adverse effects, physical exercise appears to have the greatest potential to address the psychological effects of ADT, both in men who are receiving ADT and in their partners. Donovan KA, Walker LM, Wassersug RJ, Thompson LM, Robinson JW. 2015. Psychological effects of androgen-deprivation therapy on men with prostate cancer and their partners. Cancer [epub ahead of print] 15 September 2015. www.ncbi.nlm.nih.gov/pubmed/26372364 From Richard Wassersug's Life on ADT Blog
  7. Paul Edwards

    Are you OK? Talk about it.

    Thanks to Russ for bringing this study to our attention. Too often we don't recognise just how stressful being diagnosed or living with advanced prostate cancer can be. Jill Margo, who writes about men's health in The Australian Financial Review, has written an article about a newly released study which indicated that Australian men with prostate cancer have a greatly elevated risk of committing suicide compared to their peers who don't have the disease. Click here to read the article. You're not on your own. There is help available to assist you to cope with prostate cancer. Click on this link to read a Cancer Council publication which has useful information.
  8. "Cancer can, at times, leave you feeling stressed and overwhelmed. Counselling can help by giving you the opportunity to talk through your problems and by helping you develop new ways of coping." In today's teleconference our guest speaker, Dr Addie Wootten, mentioned that Queensland was the only state where the local Cancer Council offers access to counselling with cancer-specific psychologists. To find out more about the Cancer Council Queensland's Cancer Counselling Service: Click on this link Phone 131120 or speak to your GP
  9. Paul Edwards

    Depression can be treated

    A recent UK study found that 75% of cancer patients, who were diagnosed with depression, were not receiving adequate treatment. While depression is common among men with prostate cancer, it can be treated. Tackling depression early may mean that you can deal with other problems more easily and quickly. Ways to help manage depression can include: ·Counselling Ask your treatment team or call the Cancer Council Helpline 13 11 20 for more information. Your GP can help you access the Medicare-funded Better Access initiative, which provides counselling with social workers and psychologists. A free consultation with a psychologist is available through prostmate.org.au ·Medication This is helpful for some people. Even if you feel you have good reason to be depressed, medication can help stop depression becoming an additional problem. For information on depression and tips on overcoming it, contact: beyondblue – 1300 224 636 – www.beyondblue.org.au Black Dog Institute – www.blackdoginstitute.org.au Lifeline 24-hour Telephone Crisis Support – 13 11 14 – www.lifeline.org.au
  10. Malecare is America’s largest volunteer men’s cancer support group and advocacy nonprofit organization. Joel Nowak is its Director of Advocacy & Advanced Prostate Cancer Programs. He is a survivor of Thyroid, Recurrent Prostate and Renal Cancers. If you do not already read his Advanced Prostate Cancer Blog and Newsletter, it is well worth doing so. Joel has kindly given us permission to reproduce the following article from his blog. (The article has been edited to remove 2 paragraphs with US references that are not applicable to men in Australia). "Cancer Depression – No Denying It Haunts Us All We all are subject to developing depression and prostate cancer survivors are subject to a large share of it. Besides dealing with the everyday issues of living our life, we also are hounded by our diagnosis. However, it is important to understand that there are everyday types of depression and what is referred to as clinical depression. Understanding the differences and how to deal with depression is important. The everyday types of depression are caused by bumps in the road of life. Over time, we can learn to accept these problems or take steps to resolve them and put the depression aside. Clinical depression is a medical condition that becomes part of your consciousness, obstructs your ability to function and requires the attention of a mental health practitioner. If you find your world darkened by feelings of depression; if you withdraw from social encounters, lack the any energy or will, or just don’t get pleasure in anything anymore; if you are eating too much or getting too little sleep or can’t sleep at all, feel fatigued or if you believe you are experiencing a complete personality change, you might be suffering from clinical depression. Having a cancer diagnosis, especially of advanced prostate cancer, in and of itself is significant. For many of us, especially as we make our way through the treatment process, clinical depression comes with the territory. But it can be managed. If you find that you are becoming clinically depressed: Seek the help of a social worker, psychologist and a psychiatrist, one who works with oncology patients. Counseling can: Help you develop ways to cope with your diagnosis. Understand the meaning and implications of your diagnosis. Help you make better treatment choices. Help you manage your feelings. Help you develop better communication skills with your families, friends and healthcare providers. Manage your symptoms, drug side effects, pain and fatigue. Deal with some of the financial burdens you face. Deal with workplace issues resulting from your cancer or its treatments. Understand and devise coping mechanisms to resolve cancer related sexuality issues created by the cancer and its treatments. Develop strategies to enter the post treatment world. Exercise regularly; it has shown to not only to enhance physical health, but also as an excellent way to combat depression. Walk, walk, and walk some more. There are a number of different ways to find an appropriate counselor; Ask your oncologist or their clinical nurse about counseling services available at your hospital or cancer treatment center. Ask your oncologist or clinical nurse for referrals to counselors and counseling services in your community. Find out if your employer has an employee assistance program (EAP) that provides counseling services. Check with your prostate cancer brothers from a support group for recommendations of counselors experienced in treating men with prostate cancer. Reduce stress in your life. There is some evidence that the stress hormone cortisol encourages the growth of cancer cells. Higher and more prolonged levels of cortisol in the bloodstream (like those associated with chronic stress) have been shown to have deleterious effects, such as: impaired cognitive performance, suppressed thyroid function, blood sugar imbalances, including hyperglycemia, decreased bone density, loss of muscle tissue, elevated blood pressure, lowered immunity and inflammatory responses in the body, slowed wound healing, also increased abdominal fat, which is associated with more health problems than fat deposited in other areas of the body, including heart attacks, strokes, the development of metabolic syndrome (elevated levels of “bad” cholesterol (LDL) and lower levels of “good” cholesterol (HDL), leading to even more health problems! Get a pet! Pets are known to improve the quality of life and our physical health. There have been many studies that show that the physical stroking of a pet lowers our blood pressure and increases the levels of (good) mood related hormones serotonin and dopamine. When I was having trouble walking my family gave me a dog, Charlie. I now walk Charlie several times a day, getting much needed exercise besides having a constant companion and a great friend.To read more about cancer and depression go to the NCCN web site at: http://www.nccn.com/life-after-cancer/133-dfci-nccn-survivorship-depression-anxiety.html "
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