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  1. Today
  2. I’m writing to you from my home office at Mooney in regional New South Wales, feeling a little shell-shocked, like most Australians right now. PCFA is here for you and most of us are working remotely to ensure that we continue to provide the services and support for men and their families at this most difficult time. We here at PCFA have turned our minds to two urgent priorities – stepping up our services and maintaining community funding for our vital work to provide nurses, awareness, and support. With this in mind, I’d like to seek your input and suggestions on how Coronavirus is impacting you and your family, and what we might be able to do about it. If you have five minutes to spare, Jeff and Deb and I would greatly appreciate your response to this short survey. https://www.surveymonkey.com/r/DL7WKX8 I would also be very pleased if you could circulate this email to all your support group members as it would be great for them to have the opportunity to have an input via our survey which is anonymous. As always, thank you in advance for letting us know your thoughts. I have also greatly appreciated the support, encouragement and advice I have received from the PCFA support groups over the past few weeks since taking on this important role. Without the ability to attend support meetings at this time I am also trying to contact many of you by phone over the next few weeks. Also please feel free to invite me to any online meetings you may be organising in the next few weeks or months, or contact me directly by email or phone. Kind regards, Jim The Hon. Jim Lloyd | National Support Groups Executive
  3. Yesterday
  4. Cheers Allan, Thank you very much, for such an in depth reply Brian M
  5. A more complete video with Dr Declan Murphy and Dr Michael Hofman outlining the results of their trial for doctors. Dr Alicia Morgans is interviewing. https://www.urotoday.com/center-of-excellence/imaging-center/video-lectures/video/mediaitem/1685-psma-pet-ct-imaging-for-staging-high-risk-prostate-cancer-prior-to-curative-intent-surgery-or-radiotherapy-propsma-michael-hofman-and-declan-murphy.html?utm_source=newsletter_7661&utm_medium=email&utm_campaign=news-and-noteworthy-in-march-2020-propsma-diagnostic-imaging-pout-trial-and-covid-19-impacting-gu-cancer-care The article is not on this site. If you click on the link, you will be taken to a site where we do not control the content. So, please be careful about what you read there, and ask your doctor about anything you read. You may need to subscribe to the site to view the article. If the site is temporarily or permanently unavailable, you may receive an error message.
  6. Kevin Martin


    mumof2, I can only give you my story, referred by GP to Urologist 1/4/16, seen Urologist 20/4/16 where he told me after DRE that I had PC and had to have biopsy to find the extent of it. Had a biopsy 3/5/16. Bottom line a Gleason 4+5=9. Had a Nuclear bone scan 30/5/16 and an abdomen and pelvis scan on 2/6/16. Seen rad/ oncologist 16/6/16, started Lucrin injections on 23/6/16 and Enzalutemide caps 24/6/16. I had 2 pelvic lymph nodes that had pc which were zapped with radiation that started 10 weeks after hormone treatment started. I can't comment on where it could have went after 5 months, that would only show by him having another scan I wish you and your husband all the best. Regards, KM
  7. mumof2


    we have been waiting months to get everything started and now it looks like we have a tentative date of the 16th april to start radiotherapy...so 5 months in total before any treatment...that seems so long to me is it the same for everyone? I am scared in all this time it has been spreading..
  8. Last week
  9. Hi Brian, A biopsy microscopic report of Gleason 8 / glomeruloid morphology back in 2012 with an elevated PSA means you had then and still have high risk prostate cancer. The latest PSADT doubling time of around 5 months, coupled with the positive (or at least the 'suspicious') February 2020 PSMA/PET scan says to me (an informed patient but not a doctor) that you have metastatic disease in bone and lymph nodes that has just begun to take off and which would usually require active primary treatment in the short term. Your radio-oncologist gave you sound advice back in 2012, and I would judge that he is giving you good advice now. The early Cosudex is to minimise any tumour flare and possible bone pain that might otherwise occur at the start of your ADT (Lucrin). You might ask him to elaborate on the radiotherapy (RT) that he would follow up with - conventional external beam, IMRT or stereotactic - and to outline the pros and cons. I would think that your PSA profile during the course of your treatment would dictate the timing of a follow-up PSMA/PET scan. With ADT (plus or minus RT) you would hopefully see a reduction of PSA to a very low level - but given your risk status you may eventually experience a subsequent rise. A PSA of 0.2-0.5 would give you only a 65% chance of picking up any recurring or new mets: this increases to 85% or better with a PSA of 0.5-2.0. However, not all tumours are PSMA avid, so your doctor may also order an FDG PET/CT scan if the post-treatment PSA is rising in the context of a clean PSMA scan at the original tumour sites. Since you apparently have a referral to a medical oncologist, you might want to review with him the medical alternatives to radiotherapy as you begin the ADT. Given your high risk but apparently low tumour burden - and the limitations related to the pandemic - he might discuss adding abiraterone (or one of the other newer hormonal drugs) to your ADT, or possibly graduating to one of these drugs, (and / or to chemotherapy) at a later date if your PSA and scans should move in the wrong direction. The point of these comments is that there are a number of options that may want to explore with your medical team - but you should get on with doing so. I hope this helps to resolve some of your uncertainties. Keep in touch - and best wishes, Alan
  10. You may have missed Brian's update, so I am putting a copy here. The earlier discussion is linked lower down in this post. Jim Hi folks, Finally got my pet scan results, all opinions trying to help me understand it all are welcomed. Cheers Brian Moody Original story:
  11. Brian Moody

    Trying to understand it all

    Hi folks, Finally got my pet scan results, all opinions trying to help me understand it all are welcomed. Cheers Brian Moody
  12. Alan: Robotic HDR brachytherapy does indeed appear to have the best effect with the fewest side effects. I had robotic HDR brachytherapy + 5 weeks external beam in 2009. I was very unsophisticated in those days about these matters, but it seems I got the very best treatment, despite my strong wishes to have surgery at that stage. It is available at a number of centres in capital cities around the country.
  13. Thanks for the reminders, Jim. I’ve watched the Youtube version, which was excellent - some useful new tit-bits there. The presentation describing the comparative track record of robotic HDR brachytherapy was interesting. It seems to now provide the most precise primary treatment over a wide range of prostate volumes, with the least impact on sexual and urinary performance, and the least risk of damage to rectum and bladder. Hydrogel spacing further increases the safety margin. Only two treatments one week apart are needed. This technology has been has been available in Oz for at least the last several years. There was a lot of discussion on non-metastatic advanced PCa treatments and the multiple candidate anti-androgens now available (apalutamide, enzalutamide, daralutamide) - but I think not yet available in Oz under the present PBS rules. Still no definitive recommendations on intermittent therapy for advanced patients with very low or undetectable PSA - but adding back testosterone for similar local PCa patients is interesting. For advanced metastatic PCa, third line treatment with cabazitaxel seems to be clearly beneficial, and is available in Oz under the PBS rules. Germline (inherited) gene analysis for all metastatic patients, looking for high mutation burden via MSI ('micro satellite instability)' and and DDR ('DNA damage repair') mutations (e.g. in BRCA2/1 genes), indicating immunotherapy with a PD-1 inhibitor (pembrolizumab) got some attention. (Peter Mac at least does this analysis). Liquid biopsy for somatic (tumour) mutations in mets - especially bone mets, that are hard to biopsy - was covered. Here the targets are HRR ('homologous recombination repair' gene mutations - especially double strand breaks in the DNA) and the success of PARP inhibitors (olaparib or rucaparib) was well addressed. Again, I’m not sure where liquid biopsies are at in Oz ,outside the trials context. Biopsies of metastatic lymph nodes under PET/CT or PET/MRI guidance wasn’t mentioned, but seems to be a reasonable possibility. Cheers, Alan
  14. 2020 Moyad and Scholz Mid-year PCRI Update If you did not see this streamed conference yesterday, it appears to still be online. Some features Different from any Australian conference, the PCRI conferences start with a religious invocation. https://youtu.be/zCHbul3OvP4?t=358 Most interesting if your interest is in advanced prostate cancer, Dr Evan Yu brought us Updates in Advanced Prostate Cancer. https://youtu.be/zCHbul3OvP4?t=1467 Always a highlight of the conferences is Mark Moyad's putting presenters on the spot with his key questions and questions from the audience. He speaks to Dr Evan Yu here. https://youtu.be/zCHbul3OvP4?t=3549 Dr Matthew Rettig spoke on today's treatment challenges, concentrating on a new drug Apalutamide (Erlyand® in Australia, Erleada® in USA). https://youtu.be/zCHbul3OvP4?t=6236 Dr Jeffrey Demanes spoke about radiation treatments. https://youtu.be/zCHbul3OvP4?t=7990 And faced questioning from Mark Moyad here: https://youtu.be/zCHbul3OvP4?t=11155 Finally, the highlight of every PCRI conference I've been to (five in Los Angeles + this one at my desk) is the final event where Dr Mark Moyad and Dr Mark Scholz discuss everything that has been raised, and answer questions that did not emerge earlier. https://youtu.be/zCHbul3OvP4?t=14001 Thanks to Nev Black for drawing my attention to this. Jim
  15. This link continues to allow you to watch a recorded version of the conference even if you missed the live event. You can watch or rewatch special points of interest to you.
  16. Early tomorrow morning, 3:30am Brisbane time, 4:30am Sydney, Melbourne time, etc the event I told you of earlier happens: The link I have for tonight is: https://pcri.org/2020-midyear-update#2020-invitation If that doesn't work for you, search Google for PCRI, and the link may be at the very top of the PCRI home page where I found it.
  17. Earlier
  18. Agenda Friday 27 March 2020 Roundtable If you have a story to tell, a story to update, or a question to ask, or you just want to listen - this is the time. [Did you hear Pat's final call to our February meeting on YouTube? Click this sentence to hear.] Previously advertised guest speaker Haven't heard from him - not unexpected under the circumstances. Apology? Post a reply on the forum. Start with the Go to this Topic button (bottom of this email). You must dial in - we do NOT dial you. Landline - Anywhere in Australia - 25 cents 1300 289 804 (landline call from anywhere in Australia) (cost 25 cents) When asked, enter the Access Code 44 48 67 38# (no spaces needed) You will be asked your name and business when entering the conference. Something like: 'Bill Smith from Perth' would work well. Mobile to that number - Anywhere - Your phone plan cost Some mobile plans may charge more for 1300 numbers. Best check your plan, or use one of the local numbers below. Mobile local - Anywhere - Your phone plan cost City Local Number Canberra 02 6210 0851 Sydney 02 9696 0774 Hobart 03 6218 0647 Melbourne 03 8687 0635 Brisbane 07 3811 0988 Gold Coast 07 5560 0956 Adelaide 08 8220 0836 Darwin 08 8989 0817 Perth 08 9460 0829 When asked, enter the Access Code 44 48 67 38# (no spaces needed) You will be asked your name when entering the conference. [At a meeting time, these numbers and codes will often be on each page of the website for members.] Phone numbers and code are only in emails. Problem? Contact Jim Time 9:30am - 11:00am Eastern Standard Time (Queensland) The formal phone-in meeting ends after 90 minutes. The lines are kept open for up to an hour after that for members to informally chat. Daylight savings times Brisbane 9:30am Sydney, Melbourne, Hobart: 10:30am Adelaide, 10:00am Perth 7:30am Winter times Brisbane 9:30am Sydney, Melbourne, Hobart 9:30am Adelaide 9:00am Perth 7:30am Daylight saving ends first Sunday in April Daylight saving starts first Sunday in October Apologies From. Late starters Maybe you haven't had access to the agenda or you have late breaking news you would like to share. Tell the chairman here at the beginning of the meeting that you would like to speak, and he will fit you in - probably later, perhaps right now if that suits. Special expert guest speakers ... Roundtable - new stories, updates, questions Any member who wishes is welcome to contribute here. Formal end The Chair will declare the formal part of the teleconference closed at his discretion, perhaps around 11am. The teleconference lines will be kept open until at least 11:30 for anyone who wishes to continue discussions, update his health, or just chat. Informal chat Any topic you like - topics we didn't reach, something discussed earlier you wish to comment on, an update on your health, how your new boat is going, moaning about the weather, anything that you wish to say. Disclaimer This Community does not give medical advice. No members are authorised to give medical advice. Ask your doctor if you hear anything here that you think may be related to your treatment. Mobile phone warning The costs of mobile calls are nothing to do with the Advanced Prostate Cancer Support Group or with PCFA. They are between you and your phone provider (Optus, Telstra, Virgin, Vodafone, etc). If you dial one of the capital city numbers given above from a mobile phone, the cost to you will be the cost on your mobile phone plan. If your plan gives you free, or low cost local calls, and you are in one of these cities, it should be free, or a local call. If your plan gives you free, or local cost national calls that should work too. Be sure - call your provider, give the number you might be calling, and check the cost for you to call that number. Speaking time We want many voices to be heard. If you are a member listed to speak below, the chair will probably expect you to take no more than about 5 minutes on presentation so there is plenty of time for others to respond. Special Guest Speakers are invited to speak for 10-15 minutes, then field questions. Guidelines No noise House - radio, TV, computer, pets, other phones, conversation Yourself - mute button, or mouthpiece away from mouth Phone - call waiting off (#43#), Mute button or hang up to leave the room. No mute button? ##4 to mute, ##5 to unmute. Cordless phone - don't carry, put on folded handkerchief to limit reverberation Other calls - Please do NOT use call waiting or another line on the same phone to take another call - members around Australia are left listening to your 'hold' music until you return. Speaker phone Please do NOT use a speaker phone, unless you are very good at keeping it Mute, and at lifting and using the hand piece when you wish to join in the conversation. Mobile phone You will need enough charge for the length of the call, or take the call with your charger plugged in. Speaking Speak clearly into mouthpiece in ordinary voice. Say who you are when signing in, and each time you speak. Listen for the gavel. The Chair may need to interrupt. It's a meeting of 20 people, not a simple phone conversation. If you are not one of the two people in the particular conversation at the time, keep your mute button down and let others contribute. Help the secretary by later emailing details for the minutes. Restarting You may hang up and sign in again as many times as necessary. Sometimes we may have to restart the meeting - dial in again. With everyone calling at once you may need to try more than once. Future phone-in support group meetings Fourth Friday of each month, except: January (One week early for Australia Day) and December (One week early for Christmas) Phone-in support group meeting dates 2020 17 January (one week early for Australia Day) 28 February 27 March 24 April 22 May 26 June 24 July 28 August 25 September 23 October 27 November 18 December (one week early for Christmas) Changes or questions If you wish to update us about any changes in your health or treatment, or have a question you would like answered or discussed, or you would like to talk about joining a teleconference group, let us know. Then we can put it high on the agenda so it doesn't get lost - just reply to this email, or use Contact Jim on JimJimJimJim.com. Face-to-a-name meetings South East Queensland and Northern NSW Saturday 7 March (Greenbank) Saturday 6 June (Tweed) Saturday 7 September (Greenbank) 11:00am for lunch at noon Victoria Saturday 21 March Others to be advised 11:00am for lunch at noon Sydney Need a volunteer to organise a central venue: Contact Jim or Nev 11:00am for lunch at noon This message has been sent to you because you are a member of the Australian Advanced Prostate Cancer Support Group. Visit JimJimJimJim.com and click on Contact Jim if this is a problem.
  19. Hi everyone, I've lost count of PsMa Ga68 PET/CT scans I've had; maybe 7, and about $700 each, so about $5,000 cost including transport to get scans. I was diagnosed in 2009, age 62, outrageously healthy, Gleason 9, with Psa 6, but inoperable, and so I had worse rated treatment of ADT + EBRT to PG which didn't do much, Psa went up.Full body CT scans showed nothing. In 2015 PsMa scans became available at Bridge Rd radiology place as directed by staff at Epworth. I had my first PsMa scan in 2016, Psa 6, and it showed PG was full of Pca, and it was feared it might spread locally. two small spots of Pca were seen each side of esophagus so I was first in Oz to get additional "salvation" IMRT at Epworth to PG, and to the two small lymph node mets, estimated to be 2mm dia. These would have been invisible to CT scan. I also began Cosadex. Psa went from 6 to nadir of 0.4 in 5 months, and I thought Cosadex masked any effect the extra IMRT had, and I also thought any sort of X-ray type RT was likely to be useless because of failure of initial EBRT, but at that time there was not any better idea, and maybe salvation IMRT could work with men with wussy Pca, the easy to kill type. My Pca is anything but. But my Pca had not spread to surrounding organs near PG. So I had a second PsMa scan before quitting Cosadex and scan showed more mets with 2 in bones. I began Zytiga which worked for 8 months and a third PsMa scan showed many bone mets and more lymph-nodes and I began chemo which made Psa rise from 12 to 50 after 4 shots, so chemo was useless. Yet another PsMa scan showed I had pea sized bone mets, and I was in serious trouble. Some bone pain. Not enough for pain killers. I had watched the research going on at PeterMac about Lu177, and wanted this stuff even before I got Chemo, but it seemed I had to fail chemo to be able to buy Lu177 from Theranostics Australia who began operation in Perth in 2015, but in 2018, they has a clinic in Sydney. I had 4 shots of Lu177 after November 2018, then another PsMa scan after 2 shots, and some Pca reduction was seen, not much, but After 3rd shot Psa started to go down, and I began Xtandi because docs thought this increased PsMa expression, and Psa went down to 1.7 after 4 shots Lu177, and a followup scan in August 2019 showed I'd had a good result from Lu177 and nobody said anything about doubtful results, or about mutant Pca that didn't have PsMa expression, or about FDG scans. Last November Psa nadir was 0.32, and I began to feel entirely well. But since then Psa has crept up to 1.3, docs here got me to have CT scans that showed only 2 active small bone mets. I expect Psa is now about 5 because doubling time is a month, and I will ASK for a PsMa scan next Thursday when I see my oncologist. I has Psa test yesterday. I expect more mets to be seen. If I have mets that don't make PsMa, maybe these will be seen, or I may be directed to have FDG scan. So maybe I will have more Lu177, perhaps with small amount of Ac225 added. But it all depends on whether I have enough PsMa avidity, ie, high enough Specific Uptake Value for Ga68. The PsMa scan sure would have been good for me in maybe 2004 when I feel my PG may have begun, well before any of the slightest symptoms. So PsMa scan sure have removed all the silly guesswork used to treat Pca that was so common in past years. This last week I cycled 240km. I did 82km last Sunday. I did a 25.2kph average for first 27km to cafe stop across town over a couple of hills. I feel 27, not 72. So my body seems to be healing as the last years PsMa scan report suggested, but then there is some Pca that is generating the Psa that I see now. Basically, I have been extremely lucky to last long enough with a lowish Psa < 12 before chemo, and <25 before getting Lu177, and lucky that the new theranostic treatment came to be so easily available here in Oz, and before I found myself in palliative care. All this theranostic stuff should be Medicare funded, but it ain't, even though Govt can quickly find $84billion to get Oz through this virus challenge. But I bet I won't see a cent of that dough, and interest on dough in bank has collapsed, and negative interest rate may be next where bank robs my account to pay ppl to get loans. The virus trouble may interfere with Lu177 availability. I just don't know yet. During today's 60km cycle ride, roads had far less traffic than usual. Cafe was take away only. Self isolation is very easy for me, just normal life without a wife and any kids or grandkids, and lifestyle is mainly alone, even at Easter, Xmas, and got used to working mainly alone as a builder about 30 years ago, and in a second trade of electronics after my knees failed. I had both knee joints replaced in early 2017 when Psa was > 1 and there was the "window of opportunity" - best thing ever did. The PsMa scan is wonderful, but it did not see any of my mets until 7 years after diagnosis and I think they were there, but just small, and suppressed by ADT while it worked. A man can have countless microscopic mets and he thinks he is OK, but from little things, big things grow. So ya gotta act fast on getting best treatment, and not worry much about the cost. Patrick Turner.
  20. Hooray...and none too soon. The much more accurate staging at Diagnoses or Progression can only lead to improved outcomes! Unfortunately, even when medicare covers the out of pocket gap (currently $750.00+/-) it's unlikely to be backdated.😒
  21. Jim Marshall (not a doctor) said ... Men ask: Why was my Gallium-68 PSMA PET/CT scan (PSMA scan for short) not covered by Medicare? The answer is that the CT scan part was paid for by Medicare, but the newer PET part was not covered because it is so new that there is not the evidence showing that it was better than what came before. We assume that will soon end, because the clinical trial has been done with patients in 10 Australian hospitals, and the results are in. Thanks to PCFA CEO Jeff Dunn AO for the links in this posting. PCFA was a major sponsor of the trial. YouTube video of Dr Michael Hofman of the PeterMac Cancer Centre, who led the trial, is on the post in our forums. ... end Jim PCFA news release: PCFA MEDIA RELEASE - ProPSMA - March 2020.pdf Financial Review article by Jill Margo:Australian Financial Review - Prostate cancer's new standard of care - 23 March 2020.pdf YouTube video: Bonus before/after pic:
  22. You have been referred to this page from a page which includes a treatment which is either unproven, or proven not to work. We focus on treatments for which there is clear scientific evidence. We do not have the time or energy to discuss these hundreds of other 'treatments'. You must find another online group for these unproven, or proven not to work, treatments. There is a link to a list of more than a hundred treatments which are unproven or proven not to work at the bottom of this page. If the page you came from had a code, there may be a summary of the evidence under that heading. Code Disproven1 An alternative treatment which The National Cancer Institute (NCI) in the U.S tested several times. Their testing found that it had no anti cancer effects, except that one study in 2006 found that when it was added to breast cancer cells in test tubes, it stimulated the cancer cells to grow. It may slow down the rate at which your body breaks drugs down. This can mean that some drugs will be more potent or that their effects last longer in your body. The case report suggests that it may block liver enzymes called cytochrome p450. These enzymes are important in getting some cancer drugs out of your system. ============================= Code Unproven1 Cannabis – Used as a recreational and medicinal drug. Chemicals derived from cannabis have been extensively researched for potential anti-cancer effect and while there has been much laboratory work, claims that cannabis has been proven to cure cancer are – according to Cancer Research UK – "highly misleading".[57] The US National Cancer Institute notes "Cannabis is not approved by the FDA for the treatment of any cancer-related symptom or side effect of cancer therapy. ============================= List of unproven and disproven cancer treatments Wikipedia: https://en.wikipedia.org/wiki/List_of_unproven_and_disproven_cancer_treatments PDF: List of unproven and disproven cancer treatments - Wikipedia.pdf May not be as up-to-date as on Wiki.
  23. DaveK1200

    My Cancer Journey So Far

    Hello everyone, I thought it time for another update. First I’d like to say how much Wendy and I enjoyed meeting everyone who attended the Greenbank “Face to a Name” meeting earlier this month. My wife Wendy really loved her chats with “the Girls”. It’s good to remember that we are all real people, and not just names on a computer. We’re all in the same leaky boat. (Even though we might be trying different ways to stop that leaky boat from sinking.) Anyway, here’s my latest news .... I had another PSA test this month and it’s dropped a bit again. It’s been falling for the last 5 tests in a row. My PSA was 12 in December 2016 and after 2 months of ADT it dropped to a 1.4 low. Once I stopped ADT in early 2017 due to intolerance my PSA steadily rose for 2 years until it reached a high of 14 in March 2019. Since then my PSA has steadily fallen and is now down to 8.7 in March 2020. My last 5 PSA results are ... 14, 13, 10, 9.6, and the latest is 8.7 I have not had prostate surgery, chemo or radiotherapy. I also had my fourth PSMA/PET scan done at QScan, North Lakes 13/03/2020. That was Friday the 13th, and I wasn’t really happy because I’m a bit superstitious. Wendy and I met with my oncologist at St Vincents Private, Chermside the following Tuesday, 17/03/2020. We were all delighted with the results. My previous scans had shown metastases near my near aorta, near my oesophagus, near my groin, and in my left pelvic side wall. In this latest scan the only cancer showing outside of my prostate is the one near my groin, and even that is smaller than it was in my previous scan in September 2018. My Oncologist is amazed. He fully expected that once I stopped conventional treatment in early 2017 my PSA would continue to steadily rise and my scans would get progressively worse. I asked him if the 2 months of ADT way back in early 2017 could still be having an effect. He emphatically answered “No”. I also asked him, hypothetically, if I had only just been diagnosed and this current scan was my very first PSMA/PET scan would he have recommended surgery. He answered that, hypothetically, some doctors might suggest surgery but he would have leaned more towards targeted radiotherapy on my prostate and the spot in my groin. He then added that the reason he hadn’t recommend radiotherapy for me 3 years ago was because of my original late 2016 PSMA/PET scan. He also said that he wouldn’t recommend it for me now because what I am doing seems to be working for me, even though he had thought it wouldn’t. “Just keep doing what you’re doing” has become our catchphrase. He has always known what I have been taking and he accepts my right to make my own choice, even if he thought it wouldn’t help and told me so 3 years ago. He then asked me if I would give him permission to discuss my case at a Multi Disciplinary meeting with other specialists. I believe those meetings are often used to discuss the best way to treat a case, but that is not what he wants to do. He said that he wanted to bring it up at the meeting because my case is so unusual and he wants to get the reactions of the other specialists. I wish everyone the best of luck for the future. Cheers Dave Kenny
  24. I was very much looking forward to this meeting, but I agree with Steve that this is the right decision in the circumstances. Jim
  25. Due to coronavirus concerns this meeting has been postponed indefinitely.
  26. Given the current situation regarding COVID-19 (coronavirus disease), I have discussed our meeting with a couple of regulars and regrettably we have decided that it would be prudent to postpone our meeting scheduled for 21 March. This takes into account general advice about social distancing and in particular the health status of our members. We will reschedule at a future date when the risk of COVID-19 has subsided significantly. I am disappointed but I think it's the right decision in the circumstances. Steve
  27. On our last phone-in meeting, member Pat Coughlan told his story for a final time. Here is Pat's story in his own words: Many thanks, once again, to member Len Wise for undertaking the arduous task of adding subtitles!
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